Events Archive


Wiston Lodge, Scotland 22q family camp. Wiston Lodge
Jul
20
to 23 Jul

Wiston Lodge, Scotland 22q family camp. Wiston Lodge

Outdoor Learning and Education Centre

Our 4th year hosting the Wiston Lodge Max Appeal family camping event.

This is now open to all UK families who wish to travel.

Suggested age range; 5 - 25 years.

Ten places available (with one accompanying parent / carer).
All accommodation is within the building.. Meals provided.
Activities. Instructor led, all equipment provided, using the outdoors with the opportunity to experience of wide range of activities for fun, confidence building, working in teams. Meet other children and families affected by 22q11.

Some of the activities may include such things as archery, shelter building, out door cooking, grass sledging, traverse wall, team games, dam building, Explorers walk, air rifles and challenge course but these will be confirmed nearer the date.


A small charge for each child £65 and accompanying parent £10. You will need a sleeping bag and suitable clothes for the outdoors, a suggested kit list will be provided.

The theme of the weekend is building confidence and self-esteem, working in teams and having fun. We are providing activities for all abilities in a safe environment.

Click here for more information of the site.

https://wistonlodge.com

Click here to complete the booking form.

cm.maxappeal.org.uk/payonline/wistonlodge/2026/

Booking closes 31st May 2026

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The 2026 International 22q11.2 Conference
Jul
14
to 16 Jul

The 2026 International 22q11.2 Conference

Family Information: (see further down for professional information) Thank you for your interest in attending the 14th Biennial International 22q11.2 Conference. Please note that given 22q Europe now hosts an annual family meeting (most recently in Brussels in November 2025), the 22q11.2 Society conference does not have a family meeting component but rather organizes a retreat meeting focused on basic science and clinical research. That said, families and caregivers are most welcome to attend, especially those with a medical or scientific background/those who lead family organizations, but please know that the level of discussion will not be geared towards the lay public and there is no separate registration schedule for families. Those planning to attend the full scientific program should register as an “Attendee” at the following link:
https://chop.cloud-cme.com/course/courseoverview?P=0&EID=17022.

Individuals who do not plan to attend the lectures and instead wish to participate in the social program only - including the Welcome Reception, 22q Olympics and Sunset Social, Closing Dinner, and daily lunches - should register as an “Accompanying Person” but please note that accompanying person registration is an add-on only and must be booked at the time of a full attendee registration.

 Please know that a meeting targeted specifically for families will be held in Philadelphia in September 2027 and the next 22q Europe Meeting will be held in November 2027.

Below please find all the necessary links for the upcoming biennial 22q Conference to be held at the beautiful Mirabello Bay Resort in Agios Nikolaos, Greece on the island of Crete (Havania 721 00, Agios Nikolaos Crete, Greece):

Click here for :  22q11.2 Society Meeting in Crete Abstract Hotel Fellowshp and Registration Details_January_6_2026_Final

Abstract Submission Portal

Closes at midnight EST on February 22, 2026.  Please format your abstract/s as follows:

·       Maximum 300 words – not including the title, authors and affiliations

·       Type size: 12-point font

·       Margins: 1/2"

·       Text Alignment: Justified

·       Typeface: Calibri

·       Title: Bold, capitalize first word only, left justified; Institution/s: Italics

·       Authors: Underline the name of the presenting author; Include all co-authors and their affiliations

o   VERY IMPORTANT - Submitting authors are expected to present at the meeting in person

·       Please save the file name as: “LastName_FirstName_22qAbstract2026”

·       If submitting more than one abstract, please name as follows: ““LastName_FirstName_1_22qAbstract2026”, “LastName_FirstName_2_22qAbstract2026” and so on

 

Submit your abstract here: https://form.jotform.com/butlerca/22q-abstract-submission-2026

 

Please note: IF YOUR ABSTRACT IS NOT FORMATTED or SAVED CORRECTLY IT WILL BE RETURNED - IF YOU MISS THE DEADLINE AN EXTENSION IS NOT POSSIBLE

 

 

22q11.2 Society Fellowship Renewal or Initial Application

The title Fellow of the 22q11.2 Society” indicates an ongoing commitment to lifelong learning, scholarly activities, and advocacy for those affected by chromosome 22q11.2 CNVs and related conditions, as well as to families and populations of individuals with more common conditions informed by studies pertaining to chromosome 22q11.2 differences and or variants within the region. 

 

A REDUCED MEETING REGISTRATION RATE FOR FELLOWS OF THE 22q11.2 SOCIETY WILL BE OFFERED TO THOSE WHO HAVE COMPLETED THE APPLICATION FORM AND PAID DUES PRIOR TO REGISTRATION 

 

Renew or apply to become a 22q11.2 Society Fellow here: https://forms.office.com/r/bVr7NmkF82

 

Meeting Registration, Important Dates, and Social Program

 

A scientific retreat in its purist form, the 2026 meeting will kick-off on the morning of Tuesday, July 14th and adjourn on the afternoon of Friday, July 17th

 

Please Note that an Extra Day Has Been Added to Support the Growing Number of Outstanding Abstracts

 

·       To take full advantage of the outstanding pre-conference, scientific, and social program, plan to arrive on Sunday, July 12th and depart on Saturday, July 18th

 

As has been the case since our meeting in Mallorca in 2014, the IBBC-G2MH pre-conference dialogue will occur on Monday morning, July 13th followed by our “Complex Case” discussion on Monday afternoon, July 13th. Please note that a separate registration is required for both sessions

 

·       Our outstanding Social Program includes:

o   Our Signature Welcome Reception with heavy hors d'oeuvres on Tuesday evening, July 14th

o   The 22q Olympics and Sunset Social, back by popular demand and featuring Greek pizza, on Wednesday evening, July 15th so be sure to sport your nation’s colors

o   Our Closing Dinner on Thursday evening, July 16th – so remember to pack your dancing shoes, singing voice, and party attire

 

·       As always, accompanying persons are welcome and encouraged to attend but a separate registration is required to cover our costs

 

·       PLEASE NOTE that EARLY BIRD REGISTRATION ENDS ON MARCH 22, 2026

 

Register for the meeting here: https://chop.cloud-cme.com/course/courseoverview?P=0&EID=17022

 

Hotel Reservations

 

Reserve your accommodations now at the breathtakingly beautiful Mirabello Bay Resort in Agios Nikolaos, Greece on the lovely island of Crete – the largest of the Greek islands!

 

·       A world-class beach resort, also known as the Wyndham Grand Crete Mirabello Bay this retreat venue features a private beach, multiple pools, an indoor heated pool and spa, a fitness center, tennis courts, water activities such as paddle boarding, and family-friendly facilities including a kids' club and an amazing water park

·       The meeting venue features guestrooms with private terraces or balconies with views of the Atlantic Ocean or the beautiful 18-hole championship golf course and gardens

·       Rich in points of interest and only 65 kilometers from the Heraklion International Airport (HER), this amazing venue features magnificent views of the mountains meeting the Mediterranean

·       Just 10 minutes by car, the small town of Agios Nikolaos was “discovered” by filmmakers in the 1960s, but it still feels like there’s room for adventure – with the legend-rich Lake Voulismeni as the centerpiece and surrounded by pedestrian-friendly walkways, tavernas, cafés, and shopping

·       Beyond the city center, and only minutes away, millennia-old archaeological ruins and traditional villages await

 

Reserve your hotel here: https://mirabellobay.reserve-online.net/?checkin=2026-07-12&nights=1&rooms=1&adults=1&bkcode=PHHO&currency=EUR

 

Please Note that the Hotel Price per Night Includes Buffet Breakfast, Vat and Local Taxes

 

To extend your reservation at the meeting rate, up to three days prior and/or three days following the conference, please contact central reservations at 1-506-638-4899 or 877-999-3223 within the US or Canada. To contact the hotel directly please dial +30 2841 028400

 

Questions? Please don’t hesitate to ask. We look forward to seeing your best work in the abstract portal soon and welcoming your smiling faces to our 14th Biennial Meeting!

 

Cheers,

 

Erik and Donna

 

Erik Boot                                     

Program Chair                                    

Donna M. McDonald-McGinn

22q11.2 Society Chair

22qsociety.org

 

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Scarborough Beach Day
Jun
28

Scarborough Beach Day

A relaxed family meetup on the North Bay Beach at Scarborough.

More Details to follow

Please email us at info@maxappeal.org.uk to find out more details and register your interest.

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Sleep in 22q11.2 Deletion Syndrome: Emerging Evidence and Practical Recommendations
May
28

Sleep in 22q11.2 Deletion Syndrome: Emerging Evidence and Practical Recommendations

Please note this is Central European Summer Time - Save the Date

Speaker: Dr. Corrado Sandini

Date: May 28, 2026

Time: 20:00–21:30 CET

This webinar will highlight new findings on the role of sleep disturbances—such as obstructive sleep apnea—in contributing to psychological and behavioral challenges in individuals with 22q11DS. The session will explore underlying mechanisms, discuss the downstream consequences of poor sleep, and offer practical guidance for screening and managing sleep disorders based on the latest research.

About the Speaker:

Dr. Corrado Sandini, MD, PhD, is Médecin Chef de Clinique at the Centre de consultation spécialisé en autisme (CCSA), Fondation Pôle Autisme in Geneva. He specializes in neurodevelopmental disorders and leads clinical and research efforts focused on autism and related conditions.

Who It’s For

  • Families and caregivers seeking to better understand the science behind 22q11.2 Deletion Syndrome

  • Professionals looking to stay informed and connected with the latest developments

  • Advocates and associations working to improve quality of life across Europe

🎤 What to Expect

  • A 45-minute presentation by a leading researcher

  • A live Q&A session via chat

  • Topics that connect research with real-world challenges and practical recommendations

  • A welcoming, accessible format hosted on Zoom, scheduled in the evening to accommodate families

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22q at the Zoo Awareness Day
May
17

22q at the Zoo Awareness Day

SUNDAY 17TH MAY 2026 BOOKING NOW LIVE

Hosted zoos - Twycross & Five Sisters

Booking now closed

22q at the Zoo – Worldwide Awareness Day® launched for the first time on May 22, 2011. It was originally planned as a Philadelphia (USA) event to promote friend raising and awareness. Thanks to families, professionals and other support organizations around the globe this “local” function morphed into a worldwide phenomenon where people gathered at their closet zoo for a day of fun and solidarity sporting our unique 22q at the Zoo T-shirts. While adults socialize, children enjoy the animals,. During all of this fun, teams of volunteers distribute fact sheets informing the public about 22q11.2 Deletion and Duplication Syndromes.

Max Appeal will be contributing to the price of tickets. All tickets are £5 per person,

*Twycross unders 3’s are free.

*Carers are free with the proof of eligibility (DLA/PIP paperwork)

https://twycrosszoo.org/

https://fivesisterszoo.co.uk/

If you're interested in helping host a zoo at another location, let us know! We’d be happy to promote it in our Facebook group to help attract more attendees 🐾

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London Marathon 2026
Apr
26

London Marathon 2026

We have four amazing participants for 2026 London Marathon:

Zoe Pryce

Joshua Humphreys

Emilly Cox

Katie Cox

If you would like to read more about Zoe’s story and donate, please click here: Max Appeal: Zoe's Fundraiser for Max Appeal Zoe has said that training is going well and is on target.

Further information and stories to follow.

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Parkinson’s Disease and 22q11DS
Feb
5

Parkinson’s Disease and 22q11DS

Please find attached the text dedicated to the first session:

Session 1 – Wednesday, February 5, 2026

🕗 8:00 PM – 9:00 PM (CET)
📍 Online via Zoom (link provided upon registration)
🎙 Speaker: Dr. Erik Boot (Netherlands)
🎤 Topic: Parkinsonism in 22q11.2 Deletion Syndrome

Registration site and price policy have been defined:

  • Registration website: https://my.weezevent.com/webinar-13   

  • that the webinar will be subtitled in 50 languages

  • Three pricing options are available, depending on your means and your willingness to support the event: solidarity rate (5 Eur), standard rate (10 Eur), and supporter rate (20 Eur).

This webinar will offer an accessible overview of parkinsonism and its connection to 22q11.2 deletion syndrome. Dr. Erik Boot will present current research on the increased risk of movement-related symptoms in individuals with 22q11DS, explore potential signs and long-term health implications, and share practical recommendations to support care strategies.

About the Speaker:

Dr. Erik Boot is a physician specialized in intellectual disability medicine. He works at the multidisciplinary 22q11.2 clinics for adults at ‘s Heeren Loo and Maastricht in the Netherlands. His research focuses on how 22q11.2-related manifestations develop over time and aims to improve the quality of life for adults affected by the syndrome. He is a member of the scientific advisory committee of Stichting Steun 22Q11 and a trustee of the 22q11.2 Society.

Who It’s For

  • Families and caregivers seeking to better understand the science behind 22q11.2 Deletion Syndrome

  • Professionals looking to stay informed and connected with the latest developments

  • Advocates and associations working to improve quality of life across Europe

🎤 What to Expect

  • A 45-minute presentation by a leading researcher

  • A live Q&A session via chat

  • Topics that connect research with real-world challenges and practical recommendations

  • A welcoming, accessible format hosted on Zoom, scheduled in the evening to accommodate families

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22q Awareness Day - Family Meetup
Nov
22

22q Awareness Day - Family Meetup

Join us this Saturday for a fun-filled visit to the Natural History Museum!

📍 South Kensington – Natural History Museum
Cromwell Road, London, SW7 5BD

Meet between 10:45 and 11:15
📌 Find us by the Blue Whale (you can’t miss it!)

🎟️ Grab your free tickets here:
https://www.nhm.ac.uk/visit.html?utm_source=google&utm_campaign=brand&utm_medium=grants&gad_source=1

Penny and James Biggs will be your hosts for the day—just look for the Red Max Appeal T-shirts!
Feel free to wear something red too to help raise awareness and add to the fun. ❤️

We can’t wait to see you there! 🦖✨

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The 6th European 22q11 Conference
Nov
22
to 23 Nov

The 6th European 22q11 Conference

We are pleased to remind you that the next European conference will take place in Brussels on November 22 and 23, 2025.

This conference aims to unite European families, clinicians, scientists, and researchers to share knowledge and expertise about 22q11 syndrome and foster meaningful connections.

The programme for the next European conference is available on our website. It will be updated regularly as new information becomes available.

You'll find all the practical information and the weekend programme in English, French, Dutch, Spanish and Italian. 

https://22q11europe.org/22q11-brussels-2025-conference/

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RAF Museum 22q Family meetup (Hendon, North London)
Oct
19

RAF Museum 22q Family meetup (Hendon, North London)

RAF Museum 22q family meetup, Hendon, North London

Save the date

More information to follow

https://www.rafmuseum.org.uk/london/

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Great North Run 2025
Sept
7

Great North Run 2025

Applications are now closed.

The date for the 2025 run is Sunday 7th September, the entry fee is £25.00 and the minimum sponsorship target is £250.00.

Max Appeal has secured 35 guaranteed charity places for this years Great North Run, to be held on Sunday 7th September. To secure your place please complete the entry form below and email back to paul@maxappeal.org.uk

Please ask any friends or family if they will consider taking part too. Make it a family affair !

Max Appeal will provide a free running vest and fundraising pack, pre and post race meet up opportunities and support.

It's a fun weekend too for a good cause and will help us continue our work supporting families affected by 22q11.

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The World View on 22q an International Scientific and Family Meeting CHOP
Sept
4
to 6 Sept

The World View on 22q an International Scientific and Family Meeting CHOP

Save the Date

Children’s Hospital of Philadelphia – 22q and You Center 

The World View on 22q an International Scientific and Family Meeting 

Professional Meeting: September 4, 2025

Family Meeting: September 5 & 6, 2025

Location: Philadelphia, Pennsylvania

More details to follow.

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South-East 22q family get-together day at Queen's Park in Brighton
Aug
30

South-East 22q family get-together day at Queen's Park in Brighton

Mandy Sanderson, one of Max Appeals Trustees will be hosting a family meet up at Queens Park, Brighton on Saturday 30th August at 11am.

If you need to contact Mandy on the day for help, her number is: 07354 363565

Location:  Queen's Park, meet near cafe and playground.  1 West Drive, Brighton, BN2 0QU

Whatthreewords location:  TBC 

 

HOW TO GET THERE

Public transport: see link for travel information Queen's Park

Walking route from Brighton railway station:  around 22 mins  https://tinyurl.com/yvhappy3

 

ACCESSIBILITY

Accessibility and toilets: see link for accessibility information Queen's Park

 

FOOD AND DRINK

As well as the cafe within the park itself, there are a number of places you can get food and drink nearby as well as in Brighton city centre.

Open Bakery

Menu – Starfish and Coffee

http://www.moyosburgers.co.uk/

http://www.thesettingsunpub.co.uk/

https://www.theroundgeorgesbrighton.co.uk/

http://www.hausonthehill.pub/

 

THINGS TO DO NEARBY / IN BRIGHTON

Brighton is a big seaside city and there is plenty to do and see locally.   Queen's Park is about 10 minutes' walk North of the beach.

Brighton Palace Pier | Rides, Food, Games & More

Visit the World's Oldest Aquarium! | SEA LIFE Brighton

The Brighton Zip - Brighton's number one seafront attraction

The Tourism and Leisure Destination - Brighton Marina

Royal Pavilion & Garden - Brighton & Hove Museums

 

And for those who find the beach too hot, or not suitable for other reasons including mobility/wheelchair access, but would like respite from a hot Summer's day there is a playground/park with an accessible water feature around 15 minutes' walk away from Queen's Park.  

The Level

 

 

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Archery Day - 22q family meetup
Aug
17

Archery Day - 22q family meetup

Archery Day - 22q family Event

On Sunday August 17th our very own David Pitcairn will be hosting a free archery session for Max Appeal members.

The session will be held at Newton Aycliffe Archery centre from 11am, we have secured a function room at the club as well and will be providing lunch for families as well as giving everyone an opportunity to relax and spend some time together.

For those that are aged 7 and above they can take part in the full session, for those younger we will be putting on a session with the soft arrows etc.

Further details will follow next week along with a booking form so that we are able to know numbers etc.

This should be a really lovely day provided by Dave and his Archery club so please do look to attend if you are able too

https://www.facebook.com/groups/148993685945014/

Please book your places by clicking here

Places are free of charge.

Newton Aycliffe Sports Club

Moore Lane,

Newton Aycliffe

DL5 5AG

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Bath City Farm 22q family meetup
Aug
12

Bath City Farm 22q family meetup

Unfortunately cancelled

Bath City Farm 22q family meetup

Save the date

Further information to follow

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22q families Beach meet up,  South Coast,  Bournemouth, Dorset
Aug
9

22q families Beach meet up, South Coast, Bournemouth, Dorset

Penny, one of our lovely trustees has organised a 22q family meetup on the 9th August at 11.30, at Bournemouth Beach.

Nearest car park is Bath Road car park  

Meet at The Prom cafe 11.30am (4 min approx walk ) 

Bring  picnic blankets / chairs / picnic if wish 

 Contact Penny - 07803 593913 

 

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Trip on the Llangollen Railway 22q families (Wales)
Aug
6

Trip on the Llangollen Railway 22q families (Wales)

Unfortunately cancelled..

Trip on the Llangollen Railway 22q families meetup

Save the Date

Further information to follow.

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Scarborough 22q Family Beach Day
Aug
3

Scarborough 22q Family Beach Day

Scarborough 22q Family Beach Day

We always sit infront of "the sands" apartments infront of the beach huts. Plenty of parking on "Royal Albert Drive" (seafront), by Peasholme Park and also by the Sea Life Centre.

I shall be there from around 9.30 ish so see you there!

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National Railway Museum 22q Family meetup (York)
Jul
27

National Railway Museum 22q Family meetup (York)

National Railway museum 22q Family meetup - York

Save the date

Further information to follow.

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Scottish Camp Wiston Lodge
Jul
14
to 17 Jul

Scottish Camp Wiston Lodge

Scottish families 22q family camp.

Outdoor Learning and Education Centre

Our 3rd year hosting the Wiston Lodge Max Appeal family camping event.

Suggested age range; 5 - 25 years.

Ten places available (with one accompanying parent / carer).
All accommodation is within the building.. Meals provided.
Activities. Instructor led, all equipment provided, using the outdoors with the opportunity to experience of wide range of activities for fun, confidence building, working in teams. Meet other children and families affected by 22q11.

Some of the activities may include such things as archery, shelter building, out door cooking, grass sledging, traverse wall, team games, dam building, Explorers walk, air rifles and challenge course but these will be confirmed nearer the date.


A small charge for each child £65 and accompanying parent £10. You will need a sleeping bag and suitable clothes for the outdoors, a suggested kit list will be provided.

The theme of the weekend is building confidence and self-esteem, working in teams and having fun. We are providing activities for all abilities in a safe environment.

Click here for more information of the site.

https://wistonlodge.com

Click here to complete the booking form.

https://cm.maxappeal.org.uk/payonline/wistonlodge/2025/

View Event →
Norfolk Beach Day 22q family meetup (Sheringham)
Jul
13

Norfolk Beach Day 22q family meetup (Sheringham)

22q family meetup

Come along for a wonderful and memorable day where you can connect with other families affected by 22q. It’s a great opportunity to share experiences, gain support, and build lasting friendships.

Meet at 10am at - - what 3 words.. ///scale.rinses.circulate This is near the Whelk Coppers Tearoom and Salt Café at 10am. We plan to be there about 9.30

If you can’t make it for 10am, just look out for the big red Max Appeal flag on the beach. Also check out the events on the Facebook group as Mark will add the “what 3 words” location, when they are setup

Parking Areas

1 Train Station - ///speaks.roof.backhand

2 East Cliff NNDC Carpark - ///named.galleries.operated

3 Norris Street NNDC carpark - ///trams.afflicted.blueberry

4 The Espanade - ///beginning.alive.deprive

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Knebworth House 22q Family meetup (Hertfordshire)
Jun
15

Knebworth House 22q Family meetup (Hertfordshire)

Max Appeal 22q family meetup.

https://knebworthhouse.com

Come and join us in North Hertfordshire for a day out at Knebworth House, visit the gardens, the Historic House or take a walk around the roaming countryside before walking through the Dinosaur trail …….. oh and did we mention Fort Knebworth with its adventure playground ?

Park entry is from 10:30 and we will aim to meet for a picnic on the grounds from 12:30

This a great opportunity for members to come together and meet other families, with close links to the A1M motorway and nearby railway stations we look forward to meeting with friends both old and new.

Max Appeal will subsidise entry to the park and grounds, anyone wishing to tour the house can arrange to pay the additional costs on the day


Costs £9 per person over the age 3


Carers Free with the following

Disability Living Allowance (DLA)

Attendance Allowance (AA)

Blind Person’s Registration

Personal Independence Payment (PIP)

Armed Forces Independence Payment (AFIP)

CredAbility Access Card with +1 symbol

CEA Card

Herts Card

Please indicate if you are unable to provide the following please contact us at info@maxappeal.org.uk and we will see what we can do to assist


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22q At the Zoo
May
18

22q At the Zoo

22q At the Zoo Awareness Day 18th May 2025

This year celebrates the 15th Anniversary of 22q at the Zoo.

Come along to Twycross Zoo, share your stories, make new friends and spread awareness.

Tickets are £10 each, carers are free (with evidence paperwork|) & under 3 free.

Discounted price only available to Max Appeal members and immediate family. Maximum 6 people.

Please use this booking form to order tickets = Zoo 2025 Booking Form

Your host will meet you at a designated time and place and provide entrance details and tickets.

22q at the Zoo – Worldwide Awareness Day® launched for the first time on May 22, 2011. It was originally planned as a Philadelphia (USA) event to promote friend raising and awareness. Thanks to families, professionals and other support organizations around the globe this “local” function morphed into a worldwide phenomenon where people gathered at their closet zoo for a day of fun and solidarity sporting our unique 22q at the Zoo T-shirts. While adults socialize, children enjoy the animals,. During all of this fun, teams of volunteers distribute fact sheets informing the public about 22q11.2 Deletion and Duplication Syndromes.

Tshirts available in a variety of sizes and also 2 designs. Our original Maxi Bear and our new logo Tshirts. These are not the official Zoo Tshirts, these are Max Appeal Tshirts.

Order your Tshirts here



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Rare Disease Day
Feb
28

Rare Disease Day

Rare Disease Day is 28th February – and whilst we all know that 22q is NOT rare, this is an opportunity to bring 22q some media attention. Your short video clips, stories, poems and pictures would be wonderful to see. I am sure the iconic John Lennon record will feature too!

 

If you have something that you’d like to contribute please get in touch with us at Max Appeal so that we can put all our families together in a single approach to Genetic Alliance.

Please email us at info@maxappeal.org.uk

https://geneticalliance.org.uk/campaigns-and-research/rare-disease-day/rare-disease-day-2025/

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Annual General Meeting F/Y 2022-2023 & Quiz Night Sunday 24th November 2024 at 6.30pm
Nov
24

Annual General Meeting F/Y 2022-2023 & Quiz Night Sunday 24th November 2024 at 6.30pm

Annual General Meeting F/Y 2022-2023 & Quiz Night Sunday 24th November 2024 at 6.30pm

Our AGM for the financial year 2022 – 2023 is being held via zoom at the beginning of Martin’s Quiz Night on Sunday 24th November 2024 at 6.30pm.

All the information is in the attached pdf file, where you can find out lots of fascinating information about activities From Sept 2022 to August 2023.

If you can’t make the on line AGM then we would encourage you to participate via survey monkey, there is a hyperlink and a QR code, or good old fashioned post!

Clearly, no-one would want to miss the AGM or the quiz night. The AGM only involves 3 questions and there are no wrong answers.

Quiz - Via Zoom https://us02web.zoom.us/j/88618795075?pwd=zPTzl5rDmDe2meldtjDyuErrH4PM8N.1

If you think you have something to offer the charity and would like to join the trustees, then please do complete the section at the end of the voting slip, or get in touch of you’d like to know more about what is required of trustees. Attached below.

Thank you.

 

Julie Wootton

Chairman of the Board of Trustees.

Max Appeal Annual General Meeting F/Y 2022-2023

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Great North Run 2024
Sept
8

Great North Run 2024

Great North Run 2024

We are pleased to report that we have secured our guaranteed charity package of 35 places for this years Great North Run on Sunday 8th September. The target sponsorship to be raised is £250. To secure your place email paul@maxappeal.org.uk for an entry form.


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Great North Run 2024
Sept
8

Great North Run 2024

Great North Run 2024

We are pleased to report that we have secured our guaranteed charity package of 35 places for this years Great North Run on Sunday 8th September. The target sponsorship to be raised is £250. To secure your place email paul@maxappeal.org.uk for an entry form.


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Cardiac Transition Event
Aug
29

Cardiac Transition Event

Patient Information event which is open to anyone living with congenital heart disease in Scotland to attend.

29th August 2024 Golden Jubilee Conference Hotel. Registration from 6-6.30pm and finishing at 8pm.

Beardmore Street

Glasgow

G81 4SA  

Download Invite here



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Wiston Lodge, Glasgow - 15th to 18th July 2024
Jul
15
to 18 Jul

Wiston Lodge, Glasgow - 15th to 18th July 2024

Wiston Lodge, Glasgow - 15th to 18th July 2024

2023 was the first time we used this venue (though we have had previous events elsewhere near Glasgow) and the families that attended had a fantastic time, great accommodation with plenty of activities in the grounds of the Lodge, and on-site friendly and helpful staff. We are really looking forward to seeing this year’s event being a roaring success.

Click here for Booking form

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Cranham Camp,  Gloucestershire - 24th to 27th May 2024
May
24
to 27 May

Cranham Camp, Gloucestershire - 24th to 27th May 2024

Cranham Scout Camp, Gloucestershire - 24th to 27th May 2024.

This is a regular event in the Max Appeal diary, building year on year. Lots of activities for children over the age of 8 and young adults. This year we have a falconry experience already booked.

A youth activity weekend for 7 years & upwards based in the beautiful Cotswold Hills to help the young people relax and enjoy some time together and it is an opportunity to meet other children and young people affected by 22q.

Cost: £55, plus £10 per additional adult

The theme of the weekend is building confidence and self-esteem, working in teams and having fun. We are providing activities for all abilities in a safe environment. Activities include; archery, shelter building, out door cooking, grass sledging, traverse wall, team games, dam building, Explorers walk, air rifles and challenge course.

Note:

  • Bookings close 3rd May, or sooner if camp is full.

  • Once your booking is confirmed please can you forward a completed medical form to Mark Tripp Freepost Max Appeal or email to mark@maxappeal.org.uk

For further information, please email info@maxappeal.org.uk

 

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