Caregiver Survey

Calling for carers of:

Angelman

Syndrome

Fragile X Syndrome

Rett Syndrome

22Q Deletion

Syndrome

We want to hear your voice

Taking part involves completing a short survey about the challenges faced by family caregivers of individuals with these conditions. The survey is open to family caregivers aged 18+

The study has received ethical approval from the Queen’s University Belfast Faculty of Medicine, Health and Life Sciences Research Ethics Committee (reference 489276).  Please note that caregivers taking part in this study must be over the age of 18. 

The closing date for the survey will be Monday the 16th of February. Please feel free to get in touch if you have any questions.  

For more information, please visit the QUB website where our project is advertised: News | Rare Disease Focus: supporting rare disease throughout all communities  

Further information on how to take part