A study into the Healthcare experiences of parents/carers of children with 22q11.2 Deletion Syndrome
We would like to invite you to join this study, which has been set up by a doctoral student at the University of Bath.
There will be interviews with around 20 parent/carers who have a child with 22q11.2 deletion syndrome, to ask about their experiences of healthcare for their child.
The goal is to understand what is working well in healthcare, and what is not working well or not meeting your child’s needs. The study’s findings will help identify what improvements can be made to healthcare for children with 22q11.2 deletion syndrome and their families.
Before you decide whether to take part, it is important for you to understand why the study is being conducted and what will be involved. Please take the time to read this information and the participant information document (V10.0, 15 September 2025) carefully and discuss it with others if you want to.
If you have any questions, or anything is not clear, please feel free to call the mobile number 07354 363565 to talk to the lead researcher, Mandy Sanderson, or email her on als212@bath.ac.uk
There will also be opportunities to ask questions before the interview takes place, as well as afterwards. Thank you for taking the time to consider taking part in the study.
