• Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal

Max Appeal! is a UK registered charity supporting families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion

"They (Max Appeal) have been a God send to me through the statement process, especially when you have strangers telling you they know your child better than you do, its reassuring to read others stories on here, it seems to give a bit of empowerment. Just received the draft statement, and he was awarded 25 hours of 1to1 help and that he needed a high level of adult support. The final statement is due at the end of July. Quite a good result at our end, I was expecting it to be a nightmare, but when you are armed with facts it makes it much easier."

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Genetic Disorders UK - Jeans for Genes Day - October 2015

Forthcoming Events

Latest News

  • Max Appeal Youth Camp 2018, Friday 25 May 2018
    Max Appeal Youth Weekend, at Cranham Scout Camp, Gloucestershire. Programme details to follow in 2018.

  • Max Appeal Christmas Family Meet Up- Normanby Hall, Sunday 03 December 2017
    maxi christmas3 December at 9:30 Normanby Hall Country Park DN15 9HU Lincolnshire Parent led family Meetup Looking forward to hosting another Max Appeal family meet up for Christmas! There will be a visit to see Santa for all children who would like to see him and then we can have a walk round the park and let the children play.

  • PICU and Children's Specialist Surgery Review
    NHSNHS England are seeking service users views on PICU and Specialist Surgery services for children, as part of their national service review and you are invited to take part in the webinar. The webinar is on 6th December at 11.00 and is dedicated to parents, carers and the third sector (charities). This is an opportunity to have your voice heard if this is an issue that has affected your family. If you would like to join the webinar please email the review team at england.paedsreview@nhs.net and they will respond with more information.

  • Normanby Hall Family Meetup 15th October 2017
    Normanby HallThank you to Lisa Franklin for organising this family Day out. It was my first time organising a meet up so I was a little nervous because a lot of the people who said that they were coming I hadn't met before. There were five families who came including myself and my two children and it was really lovely for people to be able to meet up with each other and chat about things. We were really lucky that they weather stayed nice for us and all the children loved climbing on the trees and having a run around. Everyone seemed to really enjoy themselves and asked that I arranged another meet up close to Christmas. Thanks Lisa

  • Jeans for Genes Day 22nd September 2017
    Image: 2_thumb.pngMax Appeal was very pleased to partner with Genetic Disorders UK for this year's Jeans for Genes day on 22nd September. Our members took part in a number of joint fund raising and awareness events around the country. Max Appeal was one of the chosen charity's in 2017 and benefited from a Jeans for Genes Day grant. Some of our families shared their stories and helped to raise awareness of 22q11 Deletion Syndrome (DS) by being part of the publicity campaign. This included being involved in photo shoots, TV and press coverage. Some of the stories placed in the press which helped to support the day and raise awareness of 22q11 DS. Monies raised through this year's Jeans for Genes Day supported the Max Appeal Youth Camp in July 2017 at Waddecar Scout Centre.

  • Beechwood Mazda Fashion Show, Thursday 07 December 2017
    mazda fashion showBeechwood Mazda 7th December 2017 - Fashion show & Christmas stall. All proceeds go to Max Appeal 8 Siddals Road, Derby, DE1 2QD

  • Great North Run 2018, Sunday 09 September 2018
    Image: photo_group__thumb.jpgMax Appeal are pleased to report that we have been successful in securing a Bronze + Charity package for the 2018 event to be held on Sunday 9th September.

  • 11th Biennial International 22q11.2 Conference, Wednesday 11 July 2018
    22qsoc11th Biennial International 22q11.2 Conference

  • Have a Brew for 22q - The Tripp Family, Saturday 25 November 2017
    table topThe Tripp's cordially invite all friends both new and old to their annual 'Have a brew for 22q' event. Tea, coffee and more importantly will be available for all at their house in Biggleswade Bedfordshire Saturday 25th November 11-4pm Please email mark@maxappeal.org.uk for more information

  • Patient Support Event 22q Family Day
    Image: 20914607_10155351916205791_8678657229772331318_n_thumb.jpgA big well done to the Office for Rare Conditions, Glasgow, for organising this event, & thanks for inviting Max Appeal to take part.

  • Noahs Ark, Perth, 22q family meetup, Sunday 26 November 2017
    noahNoahs Ark, Perth Sunday 26th November 1-3pm. Soft play & 10 pin bowling for any that think they are too old for soft play!! We have our own room to use as a base.

  • Gooey Events, Livingston, 22q family meetup, Saturday 25 November 2017
    gooeyGooey Events, Livingston- Sat 25th November, 3 pm A chocolate workshop for young adults, primarily geared at those that have left school. It will make for a small group, giving plenty chance for the youngsters to chat together whilst making truffles & slabs of chocolate, & eating it no doubt!

  • Aberdeen Science Centre 22q Family meetup, Saturday 18 November 2017
    ASCSave the Date! Aberdeen Science Centre Sat 18th November, 11 am onwards. There will be plenty time to look at the exhibits & the centre will run a couple of workshops, bubbles & bugs, exclusively for us. All ages.

  • Max Appeal Day trip to York
    Image: group_eating_thumb.jpgOn Sunday 24th September 2017, I had the pleasure of hosting a family day out to York. It's the first time I have done anything like this so I was a little nervous about it. However, the weather was kind to us and there was a good turn out including some families who had only recently joined Max Appeal. I went with my husband, Jonathan and my daughter, Rachel who is a student at York St John University. Mark Tripp and Martin Kennedy also came along to support me which was much appreciated.

  • Wimpole Hall 22q Family Day Out
    Image: 121818180_thumb.jpgOn Friday 25th August 2017 Max Appeal members came together at the National Trust's Wimpole Estate for a family day out. We explored the grounds, the house and more importantly the farm.

  • Re-register of APPG
    Image: group_photo_appg_thumb.jpgOn Wednesday 13th September 2017, Julie & Paul Wootton, Claire Hennessey, Mark Tripp and Julie Jones went to the House of Commons to re-register our APPG for 22q11. We had until 15th September to re-register. Our Chairman MP Jack Lopresti stood down and new MP David Duguid has taken the Chairman position. New members Heidi Allen MP will act as Secretary, Melanie Onn MP - Vice Chair, and Jack Lopresti as Vice Chair. All documents were signed and our re-registration was sent off and accepted. Attached are the draft minutes of the meeting. More information to follow....

  • The annual conference of the British Association of Community Child Health 2017
    Image: bacch_2017_thumb.jpgThe annual conference of the British Association of Community Child Health is always a good place for Max Appeal to have a presence as there are around 200 community based paediatricians and other professionals in attendance.

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