• Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal

Max Appeal! is a UK registered charity supporting families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion

“Thank you so much for sending us your materials from Max Appeal! You are doing a terrific job and I'm sure the families are gaining a tremendous amount of insight into the deletion, as well as, emotional support from your publications. I also applaud your interests in educating professionals about the deletion. This is really a "grassroots" effort which I'm sure will pay off in the long run. Could you please tell us how we can remain on your mailing list and also let us know if there is anything we can do to help you. We would be delighted to help in any way we can!” Donna M. McDonald-McGinn, M.S., C.G.C., The Children's Hospital of Philadelphia

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Genetic Disorders UK - Jeans for Genes Day - October 2015

Forthcoming Events

Latest News

  • 22Q Family Meetup - Mad Hatters Tea Party, Sunday 29 April 2018
    Mad HatterFamily Meet up Opportunity Arranged by Tracey Hennighan

  • 22Q Family Meet Up At Magna Science Museum, Tuesday 03 April 2018

  • CHD Patient Survey
    CHD survey adultA new patient experience survey specifically for congenital heart services has been launched across England. This survey is hosted online and designed to enable all patients - both adults and children - and their parents/carers to report on their experiences of care at specialist surgical (Level 1) centre. There are separate surveys for outpatients and inpatients as well as surveys specifically aimed at parents/carers, children and adults/teenagers. The surveys have been developed through a number of interviews with patients and parents carers and is therefore designed to reflect the aspects of their care which were important to them. These survey enable patients' experience of care to be reported in a consistent way across all centres in england. The survey is being hosted by an independent organisation (MSB Consultancy) who will produce quarterly reports as well as a more detailed annual report for each centre. These reports will provide a valuable tool in enabling centres to better understand and respond to patients' and parent/carers' experience of care. We would encourage all patients and/or parents/carers to complete a survey following any outpatient appointments or inpatient admissions by going to: If you have any further questions about the survey please feel free to contact MSB Consultancy directly at info@msbconsultancy.com.'

  • The Deep Family Meetup
    The DeepAnother excellent Max Appeal family meet up at the spectacular Hull aquarium the Deep on Tuesday 13th February where a good time was had by all. Arranged by 22q Mum Lisa Franklin, bringing together families from as far away as Skipton, Leeds and Scarborough. The value of these meetings continues to deliver, with everyone enjoying the fishy goings on with sharks, turtles and even penguins to look at. It was brilliant seeing all fish etc. but as always for me the highlight is sitting together and having lunch. It gives everyone the opportunity to meet up with old and new friends, compare stories and generally chew the cud. A big thank you to Lisa for putting herself out and creating this opportunity for us all to get together and meet up'.

  • The Colour Run London, Sunday 08 July 2018
    Colour RunIs it a bird? Is it a plane? No, it's The Color Run Hero Tour 2018! The Color Run is back and it is soaring to London Wembley Park on 8th July 2018!

  • Improving Lives - The future of work health and disability
    Dept WorkThe Department of Work and Pensions and the Department of Health have issued a White Paper on how they will make disabled people's lives better in the future. Easy to read versions available here;

  • 22q at the Zoo Worldwide Awareness Day 2018, Sunday 20 May 2018
    Image: 22q-zoo-worldwide-awareness-day-home-300x181_thumb.pngSave the Date !!!!!

  • Feeding Children With Heart Conditions
    CHF jan18The aim of this information sheet is to explain why many children with heart conditions have eating problems and what you as a parent can do to help overcome them. Click to download factsheet

  • Scottish Disability Golf & Curling
    ScotlandTwo sports founded in Scotland, are now on offer to disabled people for the first time!!! The SDGP and the DCS have now merged to form Scottish Disability Golf & Curling Sticks & Stones

  • Birmingham International Marathon, Sunday 14 October 2018
    Birm int marathon 18General entries for the 2018 Birmingham International Marathon are now open!

  • Simplyhealth Great Birmingham 10K, Sunday 06 May 2018
    bhamEntries for the 2018 Simplyhealth Great Birmingham 10k are now open!

  • Max Appeal Ramblers 2018 - Snowdon, Saturday 21 July 2018
    stockAre you looking for a new challenge in 2018? Would you like to meet and spend time with other Max Appeal parents? Have you ever wanted to climb a mountain? Have you ever wanted to take on a challenge that didn't involve running? Can you work in a team? Would you like to fund raise for Max Appeal?

  • Max Appeal Youth Camp 2018, Friday 25 May 2018
    Image: 393760104_thumb.jpgMax Appeal Youth Weekend, at Cranham Scout Camp, Gloucestershire. Programme details to follow in 2018.

  • Great North Run 2018, Sunday 09 September 2018
    Image: photo_group__thumb.jpgMax Appeal are pleased to report that we have been successful in securing a Bronze + Charity package for the 2018 event to be held on Sunday 9th September.

  • 11th Biennial International 22q11.2 Conference, Wednesday 11 July 2018
    22qsoc11th Biennial International 22q11.2 Conference

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