Coronavirus Advice Updates

Latest Government guidance on COVID-19 as at 13th May 2020

We hope the following attachment is helpful.

Information from International 22q11.2 Foundation newsletter

COVID - 19 video update
Dr. Sullivan is the Chair of Allergy and Immunology at the Children's Hospital of Philadelphia and Professor of Pediatrics at the Perelman School of Medicine of the University of Pennsylvania. She is a world-renowned clinician and researcher with specific expertise in the chromosome 22q11.2 deletion and duplication syndromes. Dr. Sullivan also leads an international special interest group including Immunologists from around the world, all of whom are concentrating on chromosome 22q11.2 differences, through the 22q11.2 Society.

If you have any concerns about COVID-19 or any aspects of your health, please check with your healthcare provider.
Thank you.
https://primaryimmune.org/news/covid-19-update-video-march-18 Right Arrow

SEND Open letter from Vicky Ford, Parliamentary Under Secretary of State for Children & Families.

Please find attached an open letter to children and young people with Special Educational Needs and Disabilities (SEND), their parents, families and others who support them from Vicky Ford, Parliamentary Under Secretary of State for Children and Families. The letter signposts key Covid-19 guidance published over the past week.

British Congenital Cardiac Association 18 March 2020

Updated statement regarding the Coronavirus.
https://www.bcca-uk.org/pages/news_box.asp?NewsID=19495710 Right Arrow

Ordering supplies of medication

As at any time it is important to ensure you order any medications in good time, rather than wait until the last minute to request a prescription.

Impact of Coronavirus on 22q11 patients. Message from Prof. Eliez.


The coronavirus crisis will most probably have an impact on the supply of pharmacies in the coming months.


Indeed, a large number of drugs are produced in China and it is very probable that there will be supply difficulties. People with microdeletion 22 who are taking a neuroleptic and / or serotonin reuptake inhibitors (anxiolytics, antidepressants) should be sure they have enough medication for the next three months.


Abrupt discontinuation of neuroleptics or serotonin reuptake inhibitors is likely to cause rebounds of psychotic symptoms or even anxiety symptoms increasing the risk of psychosis in people who are affected by microdeletion 22.



European Society for Immunodeficiencies latest information on Coronavirus (COVID-19)

ESIDPlease refer to the document published by the European Society for Immunodeficiencies 1st update as at 10th March, 2020 on the COVID-19 Coronavirus.

Also refer to national and local public health authorities advice as stated in earlier updates.

Advice relating to the Coronavirus (COVID) for those affected by 22q11 Deletion Syndrome. 7th March, 2020.

Image: social_static_1080x1080_v21[1]_medium.jpgMax Appeal has received the following guidance in the attached document.

Do keep updated by also regularly looking at the NHS website and information.