Medical & Educational Organisations
22q Society

A subsidiary goal will be to exploit the knowledge so gained for the benefit of populations of individuals with more common conditions.
Please note the 22q11.2 society is primarily an academic organization and not a forum providing discussion or individual advice concerning care.
22q Society

British Society for Immunologists

The BSI's main objective is to promote and support excellence in research, scholarship and clinical practice in immunology for the benefit of human and animal health and welfare. The BSI seeks to help British Immunology accomplish the highest possible goals.
Visit the BSI

Congenital Cardiac Audit Database

NICOR (National Institute for Cardiovascular Outcomes Research) is part of the National Centre for Cardiovascular Preventions and Outcomes (NCCPO), which sits within the Institute of Cardiovascular Science (ICS) at University College London (UCL).
NICOR collects clinical information from UK hospitals into secure registries established by the cardiovascular specialist societies.
CCAD

Congenital Cardiac Nurses Association

The CCNA has approximately 250 members from around the UK and Southern Ireland, as well as a few members from around the globe. Members are predominantly nurses however over the last few years membership of the association has expanded to promote the engagement of other healthcare practitioners working in the speciality, such as adult nurses working in the adult congenital heart disease centres.
www.ccn-a.co.uk

Children's Hospital of Philadelphia (CHOP)

http://www.chop.edu/service/22q-and-you-center

The Dalglish Family 22q Clinic - Toronto

It also educates patients, families, trainees, and health care providers and performs world class research to improve the quality of life for individuals and families affected by the syndrome.
Dalglish Family Center

Institute of Child Health - Great Ormond Street

www.ich.ucl.ac.uk

SSBP

SSBP

South London and Maudsley

Click on the link to find out what they have on offer and how you can get a referral to this very unique team.
SLaM

Totonto Sick Kids Hospital

Our mission is to provide and promote coordinated, interdisciplinary care and support to children with 22q11 deletion syndrome and their families.
Our vision is to be internationally and nationally recognized as a centre of excellence for clinical care, research and community education with respect to the 22q11deletion syndrome paediatric population.
See their factsheets!
Sick Kids Toronto
