A Great Big Thank You

August and September Facebook Fundraisers

Max Appeal would like to thank :

Sarah
James
Michelle

For Supporting Max Appeal with their Facebook Fundraisers

July Facebook Fundraisers

Max Appeal would like the thank the following people for their Facebook Birthday Fundraisers:
Linsey
Lee

June Facebook Fundraisers

Max Appeal would like to thank the following people for their Facebook Birthday Fundraisers:
Carla
Daisie
Cherry

May Facebook Fundraisers

Max Appeal would like to thank the following people for their Facebook Birthday Fundraisers:
Arlene

April Facebook Fundraisers

Thank you to Vicky, Becky, Danielle and Allison for your Birthday Facebook Fundraisers and supporting Max Appeal.

March Facebook Fundraisers

Thank you to Fran & Kayleigh for your support and your Birthday Facebook fundraisers.

A big thank you to Tommy Taylor

A big thank you to Tommy Taylor (Rebecca Oxley Max Appeal Member cousin) who ran the half marathon in February for Max Appeal in very windy conditions on the seafront in Brighton. Thank you Tommy

Facebook Fundraisers February

A big thank you to :
Lorrina's for her birthday fundraiser for Max Appeal.

A big thank you to Wayne Smith

My name is Wayne Smith and I am a member of Max Appeal. On the 26th January 2020 I completed the Farnborough half marathon which I finished in 2hrs 28m. I raised a total of £375 in donations for Max Appeal. I am due to run the Fleet half marathon on 15th March 2020 which I am currently taking donations for also. My son Freddie was diagnosed with 22q at 3 years old and we have been members of max appeal since then who have always been a great source of support and information.

Massive thank you to Lynette Dakin

Lynette Dakin held a fundraising Bingo event to raise funds for Max Appeal

Thank you to Hargraves Butchers for raising £55.00 for Max Appeal

Facebook Fundraisers

Thank you to our Facebook Birthday Fundraisers
Max Appeal would like to thank all of our Facebook Birthday Fundraisers. Sometimes we can't find the contact details, so if you see your name but haven't received a thank you card, please give us a shout.

Big thank you to the following Birthday fundraisers:

Liz
Stephen
Leanne
Melodie
Nikki
Angela

(Jan 2020)

A big thank you to a very special football team....

This is Kirsty's (Johnny's Mom) story

Thought we would let you know about the absolutely amazing day Johnny had at Manchester City at the weekend.

Johnny was diagnosed with 22q at 2 years old. He turned 8 in December and is mainly affected by speech and language issues, and can be anxious with unfamiliar situations and people. He loves playing football and watching Man City, and his favourite player is Kevin De Bruyne. We live near Glasgow and planned a trip down to watch them play in their FA Cup match v Fulham on Sunday. I emailed the club Supporter Liaison Officer to ask what time the team bus would arrive so that Johnny could see Kevin arrive, explaining briefly his condition and that he gets anxious.

We were absolutely blown away by their response, promising to make Johnny's day special. He was given access to the 'blue carpet' where he could high-five the players as they arrived off the bus, then taken on to the pitch before the game to have his picture taken with the team.

At first when I spoke with him, Johnny was unsure about being on the pitch with 40,000 people watching on, but was so excited at the experience he was an absolute star and went on with the other boys and girls in the group, leaving me at the side of the pitch.

The club were extremely accommodating, letting Johnny decide what he was comfortable with and giving me the opportunity to be with him whenever he needed support. I think he gained a lot of confidence and self-belief on the day and surprised his family, and maybe himself, at how brave he was! I know this was a big deal for him.

Johnny is second from the right in the second row, wearing the yellow kit.


thanks
Kirsty Huddleston (Johnny's mum)

A big thank you

Thank you to Paula from TKMaxx in Stockport, who's company voted for Max Appeal over a few other charities as their charity of the year. Max Appeal received a cheque for £500 - thank you to Paula, Lorraine and everyone at TKMaxx and Homesense.

Thank you to our Facebook Birthday Fundraisers
thank youMax Appeal would like to thank all of our Facebook Birthday Fundraisers. Sometimes we can't find the contact details, so if you see your name but haven't received a thank you card, please give us a shout.

Big thank you to the following Birthday fundraisers:

Megan
Melodie
Paul
Mel
Ciorstaidh

(Dec 19)

Thank you Coral for taking part in the Virtual Race 2019

These are my distances and dates, and a picture of Erica, the precious little Girl with 22q11 that I'm gifting my medal to.

A big thank you to:

Grasmere Academy - who raised £190 with a cake sale.

Everyone that took part in the Virtual Race in November.

A big thank you to Bottesford Dental Practice

Thank you to Michelle Hopkins and Bottesford Dental Practice who held a 'Have a Brew for 22q' in November and raised a fantastic £127.85 for Max Appeal.

Thank you to our Facebook Birthday Fundraisers

Max Appeal would like to thank all of our Facebook Birthday Fundraisers. Sometimes we can't find the contact details, so if you see your name but haven't received a thank you card, please give us a shout.

Big thank you to the following Birthday fundraisers:

Mark
Caz
Nadia
Rebecca
Tracey

& Erica's - No Xmas card donations - Thank you

(Nov 19)

A massive thank you to all the Great North Runners

On Sunday 8th September 35 Runners ran the Great North Run and raised funds for Max Appeal. A massive thank you to all those running.
Neil Gibbons 01:40:35
Tom Davis 01:50:19
Scott Mitchell 01:52:21
Hayley Norse 01:57:14
Helen Brandrick 02:01:26
Paul Bainbridge 02:04:19
Hannah Horsley 02:06:59
Jenny Barnes 02:07:55
Donna Morris 02:14:48
Michelle Balmer 02:14:48
Catherine Dixon 02:15:17
Alice Corrall 02:16:14
Samantha Wragg 02:17:57
John Sheppard 02:19:55
Katie Corrall 02:21:04
Noel Sanders 02:21:05
Dean Pryce 02:22:13
Zoe Pryce 02:22:13
Lucy Bainbridge 02:24:17
Archie Wootton 02:25:09
David Reed 02:27:41
Michael McGinn 02:30:55
Deborah Corrall 02:33:07
Chris Russell 02:36:44
Victoria Armour 02:39:07
Nicky Mansell 02:53:55
Georgia Wootton 02:59:12
Gemma Lynch 03:00:06
John Doyle 03:15:20
Cj Gosling 03:15:20
Barry West 03:15:20
Mark Tripp 03:15:20
Laura White 02:44:06
Claire Duddin 03:22:06
Paul Wootton 02:37:33

Thank you to everyone who took part. A huge amount of over £17,000 was raised which was amazing.

Sept 19

A big thank you to Rachel Radford and 'The Sloths'

Story by Rachel Radford

On 22nd September I was joined by my running group 'The sloths' to run the Sheffield 10K. The group aims to help people run 5k in their own time, whilst realising they can do more than they think, without being left behind and with loads of encouragement from it's founder Ian Mitchell and fellow runners. Seven of us took part and only one of us had ever run 10K before. 3 years ago I got shingles followed by a year of chronic fatigue which meant I could barely sit up for more than ten minutes at a time so to have got to 5k was a massive achievement, let alone 10! They kindly said they would join me to train and run it in aid of Max Appeal because my daughter Eloise has 22q. Some of them had never met her before but were inspired by her story and the fact that they only know what 22q is because of her.
On the day, we stuck together on a challenging course - Sheffield has many hills! We raised over £1500 including gift aid which exceeded our modest target of £500! And raising so much awareness.
On the route, people were asking about Max Appeal in the toilet queue, running up beside us to ask what it was, shouting 'well done Max Appeal!' From the side of the roads. It was an emotional day, a massive achievement to run and not stop, and totally worth it when I think of the procedures, pain and daily challenges that my gorgeous 10 year old Eloise faces. She was proud and I am always proud of her. Thanks to Max Appeal for their support and my fellow runners for running for a charity they didn't know existed 9 months ago!

Thank you so much Rachel and all your running group friends on behalf of Max Appeal
Sept 19

Thank you to our Facebook Birthday Fundraisers

Max Appeal would like to thank all of our Facebook Birthday Fundraisers. Sometimes we can't find the contact details, so if you see your name but haven't received a thank you card, please give us a shout.

Big thank you to the following Birthday fundraisers:

Sarah
Antonia

(Oct 19)

Thank you to our Facebook Birthday Fundraisers

Max Appeal would like to thank all of our Facebook Birthday Fundraisers. Sometimes we can't find the contact details, so if you see your name but haven't received a thank you card, please give us a shout.

Big thank you to the following Birthday fundraisers:

Natalie
Jack

(Sept 19)

Thank you to Alysha and Specsavers

Alysha

Alysha is a Max Appeal member and her daughter has 22q. She works at Specsavers, Reigate. Over a two week period they dressed up as Superhero's to raise awareness for Max Appeal. They didn't get as many donations this time round, but still did pretty well. Alysha said they need to do a final count, but have been holding off as many people who came in a saw the cause and came back and making donations.

Alysha's manager wanted to hold off sending the money in, and to continue to Halloween to combine the annual dress up with another charity fundraising.

Sept 19

A massive thank you to Ben Smith and family

Here is his story.....

Four-year hold Jacob inspires his family to complete 300K paddleboard challenge which raised over for £3K Max Appeal

Photo: Maxie and, from left, Jacob Smith, Kayleigh Millward, Vicki Smith and Ben Smith.

Jacob lives with the rare genetic disorder 22q11.2 deletion syndrome, also known as DiGeorge syndrome. It means from a young age he has had to contend with severe developmental issues, both physically and emotionally.
His father Ben (32yrs) said: "Jacob was born with a cleft lip and submucous palate, and a right aortic arch. At 13 weeks old he had his surgery for repairing his cleft which was a very difficult time. He suffered with feeding problems as well as reflux and slow speech, he has had a lot of input from the speech and language therapist to help his progression.
"As he began to grow he showed signs of slow development, muscle weakness and hyper-mobility. He struggled to hold his head up.
"He has very slow progression with regards to learning compared to his peers and finds it difficult with social interactions and making friends, and he gets very anxious.
"He needs regular routine and pre-warning of changes as he finds this upsetting and difficult. He also gets very frustrated when trying to communicate what he wants and if he can't explain what he means.
"Everyday things we take for granted takes a little more time and careful planning. We feel very lucky though as the condition affects each person differently and there are people who have a lot more severe medical conditions."
Ben said that the charity Max Appeal, which supports families affected by DiGeorge syndrome, has been a huge help for them with advice and support, and now they are doing their bit to raise funds.
Jacob's parents Ben and Victoria joined Ben's brother Daniel, his partner Tracy and their sister Kayleigh Millward to paddle a total of 300 kilometres on the river Wye at the end of August.
Ben said: "We raised money for Max Appeal to raise awareness of 22q11 deletion and support the thousands of families affected.
"With the support of family, friends and the help and advice received from Max Appeal we were able to move forward as a family and ensure Jacob had the extra help required.
The 300km paddle ( #SUP300 ) was the combined brain child of Ben and his older brother Dan.

Ben said;

'What a challenge it was. Each day became a lot harder for everyone but in their own way, the challenge took its toll on both our body's physically but it was also a big mental challenge. Throughout the week the following complaints/ injury's accrued, blistered hands from the paddle, blistered toes from rubbing on the board deck, sunburn and pain in ankle joints, shoulder blades and elbows were to name but a few. Day four was also a bad day for Kayleigh as a visit to hospital was required for a severely sprained ankle after she fell from her board as we finished day four.

The mental challenge came in two parts; the challenge of overcoming the mind and body's need to just stop and rest and the challenge myself and my wife faced when asked to explain the condition to others, this made the whole journey worthwhile as it has allowed to talk about Jacob and his conditions and not to bottle up our emotions. I'd like to think we have made a small difference in raising awareness for both the charity and also the condition.'

Sept 19

Thank you to Bedford Walking Football Club

This is Bedford Walking Football Club who are celebrating making Max Appeal their charity of the year 2019/2020 season. Trustee member Mark Tripp

Sept 19

A big thank you to Jamie Taylor

Thank you to Jamie Taylor for donating monies raised at Emilia's first birthday party in July 2019

Sept 19

A massive thank you to Ffion Aykroyd-Davies family

A big thank you to Ffion Aykroyd-Davies family and friends for raising monies for Max Appeal on their son's 1st birthday party. They raised just over £1,500, this is their story....

'We've made it'.. 1 whole year. Our special blue eyed boy has changed our lives forever, it's been hard but also very rewarding, one thing for sure we've got a little fighter on our hands!. Many more hurdles to come but I know he'll smash them all.
Math was diagnosed with 22q11.1 deletion earlier this year, he's our 22qtie. We have not idea what the future may hold, we take each day as it comes.
Today we celebrate an amazing little human that is loved more than anyone will know. He's adored by his big brother, we are so proud of Ollie for adapting so well throughout a year of hospitals and worry.
Raising awareness of 22q is important to us as a family and that's why we have raised the funds for Max Appeal.
Thank you the Aykroyd-Davies family
August 19

Thank you to the following:

Thank you to Peter Sheehan for selling his art pieces and donating £100 to Max Appeal. Thank you Peter

Thank you to John Davenport and Patricia Hume for donating monies raised from their 70th Birthday celebrations (via Phil Hume)

(July 19)

A massive thank you to Sharlene & Dinos Constandi and Ali Fleming

Story by Sharlene Hodgson....

We took part in the 100 mile bike ride 4th August with Prudential ride London to raise money for Max Appeal.

We just wanted to send you some pictures from the day! It was an amazing day and we got so many comments on our jersey tops and people asking what the charity was so it was great to raise awareness! We set ourself a target to raise £1250 and it feels incredible that we have gone above and beyond this and currently raised just over £2700 (inc gift aid) and we are still getting donations coming in!!!

My Aunty Ali trained really hard for the ride and all her hard work paid off because she finished it in under 6 hours, she was incredible!! I am 6 months postpartum and still breastfeeding so more of a challenge for me to get out on the bike to train, but my husband stuck with me till the end and we finished it in just over 7 hours!

All in all, it was a great challenge, an amazing day for a worthy cause.
Sharlene Constandi, Dinos Constandi and Ali Fleming

(Aug 19)

A huge thank you to Barton Stacey Football Club

Thank you to Barton Stacey Football who held a charity football match - they raised over £300 for Max Appeal. Many thanks to Marc Elliman who organised the event.
Aug 19

Thank you to our Facebook Birthday Fundraisers

Max Appeal all of our Facebook Birthday Fundraisers. Sometimes we can't find the contact details, so if you see your name but haven't received a thank you card, please give us a shout.

Big thank you to the following Birthday fundraisers
Cherry Woods
Jo Crawford
Michelle Downes
Carla Littlfield
Kirsty
Brooke
Jess
Meg

(Aug 19)

A huge thank you to Evie Alliott

Evie Alliotts' story....

First thing first: I am not a runner! I'm really not very sporty at all. I used to play netball at school, but since I started training as a midwife, the days of netball clubs are long gone!

This is why I wanted to set myself a challenge... I set myself the target of running the distance of a marathon across the month of May. Running 26.2 miles in one go was a bit too much of a challenge for me,and running this distance in between my 12.5 hour long shifts (night and day!) would be tricky enough.

My younger brother was diagnosed with DiGeorge Syndrome at the age of 11. He is the most wonderful, kind hearted boy I've ever met, and I wouldn't change him for the world. The Max Appeal have been absolutely fantastic in providing information to my family, and I really wanted to give something back.

I aimed to raise £220 - for chromosome 22 - but was actually lucky enough to raise £463.12 in total.
It definitely wasn't an easy challenge, and I won't be rushing to do it again! But it was definitely worth raising the money for such a fantastic cause.

Thank you Evie - July 19

Thank you to Craig and Angela McKee and their friends

A massive thank you to Craig and Angela McKee who organised a sponsored cycle on 1st June 2019 raising funds for Max Appeal and Lymphoma Action in memory of their beautiful daughter Danielle.

The Ladies did a sponsored cycle around the Isle of Cumbrae on Saturday 1st of June. 30 gals made up of Danielle's family and friends turned out on the day clogging up the roads on the island which included a 7 seater bicycle. There was a few sore bottoms the next day. All said it was worth it. Again the support they are receiving is humbling.

They managed to raise £5000 from the 2 events. Split equally between Max Appeal and Lymphoma Action.

Thank you so much to the McKee family and their friends.

A big thank you to the following :

Moredon Primary and Nursery School in Swindon who held a cake sale and raised £37.76

Ham Dingle Primary School in Stourbridge who had a fundraising event and raised £330.85

Thank you to both schools what a fantastic amount raised

A huge thank you to the McKee family

Angela and Craig's special golf tournament salutes tragic Danielle

A family were supported by dozens of golfers at a special tournament set-up in memory of their late daughter. Angela and Craig McKee teed-up the fundraiser after they lost Danielle to cancer when she was just 23. Almost 100 players from across the UK did their bit – including wearing boxing gloves as they teed off – to help raise more than £3,000 for charity.

Mum Angela, 50, said: 'We're overwhelmed by the support we've had. 'Lots of friends and family coming together is a great way to keep Danielle's memory alive, 'we had players travelling up from down south and from all over Scotland'. 'All the money goes directly to charities supporting sick young people and their families.' Angela and hubbie Craig, 50, and son Craig, 19, ran their first tournament last year. This year's competition at Elderslie Golf Club was even bigger and better. Danielle suffered from rare genetic disorder DiGeorge Syndrome. It affects just one in 4,000 children and batters the body's defences. It ravages the immune system and leaves patients more susceptible to illness. Danielle died two days after being diagnosed with cancer in November 2017. She was well-known for working behind the deli counter at Paisley's Morrison's supermarket. Her family have ran a series of events, coining in £25,000 in the last two years. Funds will be split between the Lymphoma Association and Max Appeal, which helps others with DiGeorge Syndrome. Angela added: 'We had representatives up from the charities for the tournament. 'Their support has been invaluable to us. We want to do whatever we can to help raise awareness of the conditions.

A massive thank you to the McKee family

Thank you Natalie Wilson and your team

Natalie Wilson

Last June my husband and I found out the news that our son Byron had 22q. He was one and a half at the time. As you can imagine we had a whole host of questions and a lot of hospital tests. I found the support from Max Appeal really helpful especially the consensus document as I really wanted to understand how this could affect Byron. I have also found the Facebook page a great support. After digesting all the information and hospital appointments settling down I decided to speak to my team at work and complete a have a brew for 22q. Alongside the have a brew aspect we also came up with some other ways of raising money.

We had items donated to us to make up these beautiful raffle prizes which we sold tickets for and drew on the night. We had a member of the team make a beautiful Indian takeaway which we sold alongside ladies from my team going up and down the floor selling and making tea's and coffee's to staff on the phone along with cakes and other treats. We all had a great evening and the atmosphere was brilliant. Through our event we have also raised awareness. Hopefully my company will also complete matched funding bringing our total for the evening to £732.00.

June 2019

Well done Scooby Gang!!!

Hull 10K run – 2nd June 2019 – Tracey Frank (Max Appeal member)

What a fantastic day on the 2nd June 2019, we all dressed up from characters from Scooby Doo and took part in the Hull 10K run to raise funds for Max Appeal. There is also a link below for the Hull Daily Mail which also has a picture of us
The first picture of the Scooby Gang are:
Mike - Fred (family friend)
Wayne - Scooby Doo (kobi's dad)
Jayde - Daphne (kobi's sister)
Pete - Shaggy (family friend)
Beth - Velma (kobi's sister)
Tracey - me at the end supporting them all
Front - Meka (kobi's sister) Kobi and Isobel (friend)

On the second photo is Sue on the left who also ran supporting the scooby gang
We think we have raised in total including the Have a brew and quiz night over £2150.

https://www.hulldailymail.co.uk/whats-on/whats-on-news/hull-10k-results-2019-first-2932890?405

A big thank you to the the Kiltwalkers!!

Aberdeen Kiltwalk – written by : Gemma Martin

On Sunday 2nd June, Bella's dad, Di, Uncle Thomas and his girlfriend, cousin Tyler and Uncle Kevin (Scotty) took part in the Aberdeen Kiltwalk - a 26 mile walk into the city. Our little girl Bella was diagnosed with 22q11.2 deletion syndrome in November 2017 when she was aged 4, so Max Appeal is a charity close to our hearts. The group encountered rain and shine and for the most part enjoyed the challenge. There are sore legs and feet the day after but they are delighted they completed the walk for a great cause!

June 19

A huge thank you to all our London Marathon Runners

A massive thank you to all our London Marathon Runners who pounded the streets on London on Sunday 28th April 2019 to raise money for Max Appeal. Those running were:
Charles Campey, Michelle Dix, Scott Maden, Ashley Fraine, Hayley Shepherd, Ruby Shepherd, Desmond O'Flynn and John O'Flynn. There were a few sore legs, knees and backs, and many blisters but they all managed to make it to the finish line. An amazing amount of money was raised for Max Appeal. Thank you so much everyone !!

A huge £21,500 was raised by you. Well done!

Picture - Michelle Dix

Charles Campey

L - R - John O'Flynn, Ruby Shepherd, Hayley Shepherd, Dezzy O'Flynn

Scott Madden, Patrick Waggett, Ashley Fraine

A big thank you to Tracey Frank, family and friends

A massive thank you to Tracey Frank, her family and friends.

They held a "Have a brew for 22q" was at Burstwick Village Hall, Church Lane, Burstwick, HU12 9ES on 13th April. They sold books, games, jigsaws and toys, a Tombola, a raffle, a spin to win game and a small bouncy castle. A cuppa and cake £2 for adults and juice and cake £1 for children.

Donations from Asda Mount Pleasant in Hull were received also from Hull and Malton branches of Morrisons. Plus local donations from Kreative hair salon, Scott's the Barber and Becketts news agents all in Hedon.

A huge amount of £370 was raised. Tracey and her husband are on the right of Kobi (who has 22q) and their daughter is on the end. The ladies in the picture, all their husbands are all running in the 10K Asda Run in June on behalf of Max Appeal, so they pinched their t-shirts just for the photo!

April 19

A huge thank you to Craig, Angela and Craig Jnr McKee and Morrisons Paisley

A massive thank you to Craig, Angela and Craig Junior McKee for holding a charity night in memory of their lovely daughter Dani. The night was held on the 2nd March at St.Peter's Club in Paisley. It was well attended. They held mini races to kick off the evening , a raffle, giant football card and a few other games followed by a night of dancing. This is what Dani would of wanted.
Morrisons in Paisley had an awareness weekend in November raising funds at the same time. Their support and compassion was amazing. Danielle was a popular member of staff in the store. Morrison's plan to make this an annual occasion going forward.
A grand total of £3,000 was raised and split between Max Appeal and Lymphoma Action.
This was an amazing amount of monies raised for Max Appeal, and Max Appeal would like to thank everyone who was involved.

A huge thank you to Sue Liddell

On Wednesday 6th March Sue Liddell held a fundraising day at Legal and General for Max Appeal. A percentage of the monies raised were from local businesses selling their goods at
work for Max Appeal. The day was a huge success and people were very supportive and generous.

The raffle raised £958
The brew for 22q £83.26
The stalls £128
Donation from a stall holder £50
Matching amount from L&G £500
Total: £1719.26.

I have attached a couple of photo's of the day – and I'm sure you will agree that it looks an amazing Max Appeal cake !!

On behalf of Max Appeal many thanks to Sue, Rebecca and all the staff at L & G.

March 19

A big thank you to St Thomas' Church

A big thank you to Rose Hoey and the committee from St Thomas' Church in Stourbridge who raised a whopping £250.00 from the Christmas Tree Festival held in December. Rose met with Julie Wootton last week to present the cheque to Max Appeal.

Feb 19

A big thank you to The Garret

A huge thank you to The Garret Pub and Lounge in Mintlaw who held a Boxing Day Pool and Darts event and raised a massive £500 for Max Appeal. Our member Gemma Lamb notified us of this as it was a total surprise to her that they were doing this.

A big thank you to Michelle Downes

A big thank you to Michelle Downes and her mum who raised a whopping £235.05 in November for their sponsored line dance. A collection tin was also put out at Michelle's mom's 60th Birthday party and family and friends were very generous. Dec 18

A massive thank you to Ivy Mitchell and all her friends

In November Ivy Mitchell, with the help of her friends at her school William Alvey C of E School, Sleaford held a non uniform day in conjunction with Children in Need and raised a fantastic amount of £420.00 for Max Appeal. Here is a lovely picture of Ivy and her friend Violet. Dec 18

Thank you to Ian Kinnear

Ian's father sadly passed away last month and he nominated Max Appeal as the chosen charity for donations at his funeral, Alex his grandson is affected by 22q so he was always in his thoughts. £500 was raised, thankyou to all friends and family that donated. Dec 18

A big thank you to Moira Stephenson

Thank you Moira Stephenson - who donated £77 to Max Appeal from her 40th Birthday celebrations - Dec 18

A big thank you to Louise Henderson

A big thank you to one of our Max Appeal Trustee's who on Saturday 24th November had a Brew for 22q at her House. David Duguid MP was first to arrive and after that it was quite steady. Louise had sold plenty of raffle tickets before the event and had prizes which were donated from lots of kind people. The kettle was never off and she had lots of home bakes also donated. The last people to arrive were Sarah Goodyear and her lovely family who were fresh from finishing their 22 beaches in November challenge. Her grand total was £341.18 and Louise was delighted with such an successful event. Nov 18

A big thank you to James Evans

A massive thank you to James Evans. This is his story...
I will be running the Bristol half marathon in September and would like to raise money for Max Appeal. Max Appeal supported my brother and my family when we were younger; it is a cause that is close to my heart and a charity I have seen at work first-hand, and I would like to give something back.
James raised £305. Thankyou James on behalf of Max Appeal (Nov 18)

A massive thank you to Rosemarie Dakin

A big thank you to Rosemarie Dakin (Lynette Dakin is a Max Appeal member) who's mom turned 70 in September – I have to say she doesn't look it...., Rosemarie held a birthday party and decided to have a collection for Max Appeal instead of presents and raised a whopping £520.00. (Nov 18)

A big thank you to Denise Munro and her playgroup

A big thank you to Denise Munro who held a coffee morning at her local play group. Lots of cakes were made and sold and £30.00 was raised towards Max Appeal, and everyone enjoyed it. (Nov 18)

A big thank you to Steve and Nicola Dearling

A huge thank you to Nicola Dearling and her husband Steve, for hosting an Oktoberfest and a good luck party for Steve (her husband) who is off to serve in Afghanistan for 6 months. A great night was had by all and a whopping £500 was raised for Max Appeal. (Nov 18)

A huge thank you to Frank Ladley

Teri Ladley is a Max Appeal member this is her story....

So proud of my Dad he completed the Great South Run on Sunday 21st October – 10 miles in 2hrs & 10minutes. He is 56 years old and here is a little bit about him. He obviously chose Max Appeal cos of how great it is but here is why the run was a big challenge for him.
These are his words .... I have chosen to run the Great South Run as it will be a personal challenge for myself. I have had a couple of medical problems myself over the years that I have had to overcome. When I was 28 years old I was diagnosed with Ulcerative Colitis and had to undergo a major operation in which I had my large intestines removed and an internal pouch inserted. 6 years ago in March I had a respiratory arrest, I'm very lucky to be alive. I now have to take daily medication to keep myself breathing. This encouraged me to quit smoking. 3 years ago my internal pouch had done all it could, lots of complications arose so I had to have another major surgery - which didn't go quite go smoothly and now have a permanent stoma bag
A fantastic achievement, thank you on behalf of Max Appeal. Frank Ladley has raised in excess of £300 for Max Appeal.

October 18

A massive thank you to Craig McKee, family and friends

This is Craig's story....
Craig McKee and his family held a Sportsman's Dinner to raise funds for Max Appeal and Lymphoma Action in memory of their beautiful daughter Danielle.
The Sportsman's Dinner was held on 5th October 2018 at Blacklandmill Bowling Club in Paisley. We sold over 140 tickets for the event where our guest speakers were Tam Cowan (BBC sports pundit) and George McNeill (a former British champion sprinter).
Everyone enjoyed a 3 course meal which our family and friends kindly gave up their time to prepare and serve free of charge.
To raise funds for Max Appeal and Lymphoma Action we had a giant football card, raffle and a charity auction.
For the Auction we had a hospitality package for 5 people at Celtic, hospitality package for 2 at Rangers as well as signed football shirts and limited edition malt whiskies. In one of the pictures you can see myself with the Rangers top on and with me being a Celtic fan that's a big thing but I was challenged £50 to do it adding to the funds. Anything for the charity!!
Everyone involved dug deep on the night and we managed to raise an incredible £5,000 to be split between the 2 charities.
On top of this we importantly raised awareness of both Charities.
Thank you so much to Craig, his family and friends. Oct 18

A massive thank you to all the Great North Runners

On Sunday 9th September runners descended on Newcastle upon Tyne for this years Great North Run. Max Appeal had 29 runners taking part in this years race. Here are a list of the runners and their times. A fantastic achievement by all.
Waleed Agabani 01:47:30
Barry West 01:51:16
Daniel Buckley 01:52:23
Mark Hall 02:00:49
Joseph Farmer 02:01:16
Anna Parry 02:09:48
Matthew howell 02:11:18
Trevor Sutcliffe 02:11:42
Joe Timothy 02:13:05
Shell Dillon 02:15:04
Oliver Barker 02:15:54
Katie Corrall 02:16:42
Donna Morris 02:17:12
David Ahern 02:22:23
Anne Noott 02:27:20
Joss Hughes-Jones 02:27:31
Deborah Corrall 02:34:02
Wendy Chantrell 02:38:28
Gadge Grocott 02:40:50
Chris Meldrum 02:42:14
Chris Swale 02:42:28
Grant Smith 02:49:39
Gillian Christie 02:52:39
kelly Tripp 02:53:33
Sue Booth 03:01:02
Helen Farris 03:01:02
Gemma Lowe 03:06:54
Georgia Wootton 03:08:21
Rachael Green 03:26:33

A whopping £16,000 has been raised so far. Thank you so much to everyone who took part in this event, and raised a fantastic amount of money for Max Appeal. Sept 18

A massive thank you to the team at Jaguar Land Rover

In early January 2018, a group of friends, who all work together as engineers at Jaguar Landrover, decided that we wanted to push ourselves beyond our limits by running as far as we could. After much discussion, we all agreed that the Equinox 24 hour running event would be "the one". The idea of this event is for our team of eight to run in relay formation, each completing up to 40 kilometres non-stop for 24 hours starting midday on 22nd September 2018, running through the night and finishing at midday on 23rd. By taking on this challenge, we will be raising awareness of a condition known as 22q deletion and also raising money for the supporting charity Max Appeal.

One of our band of brothers, Colin North, has a little boy named Henry who is 6 months old and suffers 22q11 deletion

Although the course was as tough as expected, the cheers of encouragement from the crowd gave us an extra boost to continue through the night. As daylight returned, our spirits started to lift as we joined our final runner Colin North and ran over the finishing line together, to mark a triumphant ending to a tough but very rewarding charity challenge.

The team would like to thank everyone who has supported their cause and helped us raise a fantastic amount for a worthy charity and one that is close to our hearts.

A huge thank you to all the runners: Marc Salmon, Martin Wilkes, Lloyd Leavis, Jon Jones, Ryan Whinmill, Dave Cattell, Simon Gill, Colin North

A amount of nearly £3,000 has been raised so far. Sept 18

A big thank you to Gemma Martin

A big thank you to Gemma Martin who did a 'Intoxicating Have a Brew for 22q' night in September. This is her story...
When we got Bella's diagnosis in November 2017, I did the worst thing and Googled 22q. After speaking to specialists and Genetics we are confident that Bella should be quite mildly affected. Other 22q parents have welcomed me into groups and I realise this isn't the case for everyone. Although our diagnosis is relatively new, the Consensus Document has already proved invaluable in introducing the syndrome to Bella's school and Max Appeal will be my first port of call should I need any more advice or assistance

We don't know what support Bella will need in the future, but without fundraising Max Appeal wouldn't be there to help us and the other families living with 22q, so it was a no brainier to hold an Intoxicated Brew to raise awareness and funds.

We also had a visit from our APPG Chairman, David Duguid.

I would like to take this opportunity to thank Linda and her staff at The Garret Bar in Mintlaw, Aberdeenshire who did a fantastic job and laid on a beautiful spread and delicious cocktails! Also a shout out to all the local businesses that donated prizes and to each and every individual who bought tickets for the event, lucky squares and raffles. Without this generosity the event wouldn't have been as successful as it was.

The final total was £3517!!!

Bella doesn't live with 22q; 22q lives with Bella.'
Sept 18

A big thank you to Sharon Sharpe

Sharon Sharpe had a 'Have a brew for 22q' this is her story....

My 'have a brew for 22q' went really well. I raised £250 but hoping some more monies will come in and would love to make it closer to £300. Will Keep you posted.

This is Eloise's story.

Eloise is now 10 but at 6weeks old at Great Ormond Street, we were told her heart condition wasn't compatible with life and also diagnosed with DiGeorge Syndrome. Eloise was sent to our local Hospice for end of life care, so we frantically searched the internet for answers. That's where I found Max Appeal and I spoke to a lovely Lady (can't remember name) who told me about a surgeon at Birmingham Children's Hospital who maybe able to help.
We asked for a 2nd opinion and on our 1st visit for open heart surgery your charity had left a bear sponsored by a charity ball which was left on Eloise's hospital bed. It was a very daunting time but this small gesture went a long way. Ever since then the charity has given us much needed guidance to help our expectations of dealing with 22q.

This gave me the opportunity to raise awareness and to give something back to a very worthwhile charity that means so much to us as a family.
Sept 18

A massive thank you to Keith Jasper

On 15th and 16th June 2018, Keith Jasper (Steph's husband) took part in a charity bike ride from Wolverhampton to Aberdovey. The distance was 250 miles!!!. The Aberdovey bike ride is an annual charity bike ride to raise funds for local charities. They have been operating since 1992 and have provided a charity bike ride each year. This year Keith completed this ride and raised an amazing £400 for Max Appeal. It was a very gruelling ride which was over 2 days. A coach gets you and your bike back home, however Keith decided that 1 days cycling wasn't enough, stayed overnight and cycled home the next day needless to say he had a well earned rest in the jacuzzi when he got home !!
Thank you to Keith for completing the ride and raising a fantastic amount of money for Max Appeal.
Sept 18

A big thank you to the team at Twentysix

Max Appeal member Samantha Wragg walked the Three Peaks in August, this is her story:

A group of us bold, and questionably underprepared, Twentysixers recently took to the Yorkshire Dales where we traversed almost 25 miles (could've added an extra mile to keep things on brand), climbed roughly 1,600 metres, and saw lots, and lots of sheep.

Only a few of us thought this was going to be a walk in the park, but here at Twentysix, we love raising money for a good cause, and we wanted that to help out the wonderful people at the Max Appeal. We raised £1695.00

Would we do it again ......Now that all the hurting, aching, and most of the blisters have subsided? Without a doubt! We raised, and exceeded, our target, we saw some wonderful sights, met some train spotters (nowhere near as interesting or fun as Danny Boyle's classic), and we can all now say that we've completed the Yorkshire Three Peaks!

Here's to next time. Maybe. In a few years. Or not!
Sept 18

Thank you to.....

A big thank you to John Sherrat and Kay Martin who's local Wolferton Bingo and Social Club raised a whopping £355 for Max Appeal

A massive thank you to Alysha Gill and everyone at Specsavers

I (Alysha Gill) work for a Specsavers store and each year a staff member gets to put forward a charity to raise money for. It goes on for a week and we dress up, raffle prizes and generally have fun while making money for a good cause. My daughter was recently diagnosed with Di-George's Syndrome and this charity is one I would like to raise whatever we can for to help. Our charity week took place between 13th and 20th August and we all dressed up as super hero's. During the week we educated so many people about the charity and DiGeorge Syndrome, it has been amazing.
Our target was to hit £500 and we've definitely gone over that. We will be doing a count in the next few days and send you the final figure. (Not including the money in the collection box you kindly provided) Aug 18

A big thank you to David and Sarah Oddy

Sarah and David Oddy with the help of their son Nick, made a custom tenor guitar (www.oddyluthiers.co.uk) and raffled it at the Show of Hands festival in July. The photograph below is the winner of the hand made guitar. Sarah and David decided to hold the raffle as a close friend of theirs daughter was recently diagnosed with 22q.
£850 was raised on the day a further £110 was collected later. There may have been some additional donations via facebook. A huge big thank you to the Oddys' for their generosity and supporting Max Appeal. (Aug 18)

A big thank you to Craig and Angela McKee, their friends and family

A big thank you to Craig and Angela McKee for organising a charity bike ride around Millport on the Isle of Cumbrae in memory of their beautiful daughter, Danielle McKee.
Friends and family all took part in this event and raised a whopping £750.00
Many thanks to all involved. Aug 18

A huge thank you to Samantha Wragg and Twentysixdigital

Max Appeal member Samantha Wragg worked with her Employers 'twentysixdigital' to organise a fund raising quiz night and auction in Leeds on the evening of Thursday 31st May.

The evening was introduced by twentysix CEO Gail Dudleston and Max Appeal Trustee Martin Kennedy and the auction commenced. Prizes were very generously donated by business clients and ranged from designer furniture to an evening with Brian Cox and raised an incredible £5200.

The evening was a huge success and was very well supported by everyone at twentysixdigital.
(June18)

A huge thank you to Craig McKee and family and Elderslie Golf Club

A few words by Craig McKee

This was raised at our 'One Love' charity golf day last Friday 1st June at Elderslie Golf Club.
80 golfers turned out to honour our beautiful daughter Danielle's memory. £3000 was raised from the day with donations split between Max Appeal and Lymphoma Action.
We had a huge football card made up with the logo's. We plan to use this as often as possible.

The day was a massive success with the sun shining and the golf course in brilliant condition. It was such a success that we plan to do it all again next year.

The added bonus was raising awareness for both charities.

Danielle would have been so proud that so many people gave up their time and money to support the day.

The golf competition was a Texas Scramble format which makes it more fun for everyone participating. Dad's (Craig) team won on the day which is only fitting lifting a trophy with Danielle's name on it. Added to this we had a giant football card and a raffle that so many people donated to.

We would like to thank everyone that attended and also to those that supported us with donations etc. Their support has been overwhelming and we are truly humbled.

Keep up the good work Max Appeal (June 2018)

Football card photo below......

A big thank you to Kelsi Mitchell for completing the Nuclear Rookie Rush

Kelsi Mitchell completed the Nuclear Rookie Rush in May and chose Max Appeal as it is also close to her heart, with her close friends little soldier Jacob, who we have seen fight every step, every day since he was born 4 years ago. Jacob has been through so much in the space of 4 years, even having to fight for his life at days old. He is a fighter and does everybody proud every single day. The nuclear rookie rush is a 1.5/3km obstacle run in which you take part in all kinds of things,climbing through tunnels over walls,down slides etc. Aswell as running in the heat that day, it was worth it. Kelsi will be taking part in this every year.

Kelsi has so far raised £200 on just giving,still waiting on more sponsor money from family and friends.

Thank you Kelsi (May 2018)

A big thank you to Samantha Revett

On Sunday 3rd June I took part in the Worthing 10k run to raise money for Max Appeal. I chose this charity because it's foundation is close to my heart.

My close friend, Rebecca Oxley, has a 2 year old daughter who has 22q and I see how hard she and her husband, Jack, work every day to support Ellie-May.

When Rebecca suggested that I join her in taking part in the Worthing 10k I laughed. I've never been super fit and never really taken part in a fundraiser before, especially one that depended on me running! But I decided why not and it all goes to a good cause. In the run up to the event, however, I was so nervous I felt like the pressure was on.

Having done little to none training I felt like I may not do so well on the day. But I arrived on the morning at the race village and saw Rebecca and Jack with Ellie-May ready to cheer me on. I felt a little spark of confidence and I reminded myself why I signed up.

Although this charity means a lot to me and is close to my heart, there was another big reason why I was determined to cross the finish line. There are some people who are physically affected by 22q, VCFS and DiGeorge to the point where they will never be able to participate in events like this. I take my ability to walk and run for granted every day and never think twice about it. So taking part in the Worthing 10k was also a personal reminder to appreciate those little things in life.

From this experience, I learnt a few things. First of all, don't skip the sun cream before a run on a hot day in June!! You'll regret it. Secondly, self reflection is a great thing. Remind yourself once a day to be grateful for what you have in life and think of others. Lastly, there is a natural human response to fear the unknown. In this particular case, to think that your loved one may have a genetic condition that you've never heard of before, which could potentially harm them, is heartbreaking. This is the most important lesson - we need to raise awareness of 22q. Despite being the second most commonly diagnosed genetic condition, the awareness is really low. I believe that raising awareness of 22q will help families affected by these conditions and Max Appeal are a prime example of this positive support.

I'm proud to say that I ran the 10k course in 1 hour and 13 minutes. And I'm even prouder to say that my fundraising will go to the teams at Max Appeal to support families in the UK.

Thank you, Max Appeal for all your hard work and support. I hope to be able to contribute to you again in the future. (May 2018)

A big thank you to Craig and Angela McKee, their friends and family

Thank you to Craig and Angela McKee who held a fundraising event in memory of their daughter Danielle. This is their story...

We had a fundraising night in February in memory of our beautiful daughter Danielle who passed away last November aged 23.

Danielle was diagnosed with Hodgkin Lymphoma after a spell in hospital. She sadly passed away 2 days after diagnosis.

Danielle was born with Di George and lived a normal life and boy did she live it to the full. She never let the illness get in her way despite the many hospital and doctor visits. For this we couldn't be more proud.

The fundraising night was attended by 250 people which is testament to how popular Dani is. We raised £6200 on the night raising funds for your wonderful cause and for Lymphoma Association, both receiving £2500

We also have a Charity Golf day arranged in June, a sportsmans dinner in October and a Ladies charity ball in November. We hope to raise lots more from these events and will duly pass the funds raised on to you. (May 2018)

Another big thank you another Marathon runner....

Troy Wood ran the London Marathon on 22nd April for Max Appeal, in a fantastic time of 6:53:08 hours. Here are a few words from Troy....

Hey guys! What an experience. After all the pre warnings about it being the hottest marathon ever I set off in the blazing heat! I was in good spirits when I saw Rae, Beth and Debs at mile 9. I could feel my leg issue there but it wasn't too bad so I carried on enjoying taking in the atmosphere of London's best day of the year! The crowds were insane and the other runners were inspirational, all plodding along together drenched in sweat & suncream! Unfortunately around half way my leg pain felt so much worse and by mile 15 I was walking and barely able to run in little spurts! I saw the ladies again at Canary Wharf between mile 18 & 19, at this point I was limping but I braved a smile through the pain to push me on! About a mile later one of the St.Johns crew ushered me over and gave me paracetamol! and I went on my way again. I got to just past mile 25 and I heard a crowd chanting 'TROY TROY TROY TROY TROY...' I thought that was a bit of a coincidence, then realised Rae, B & Debs were there and had got a whole crowd on board to cheer me past! The crowds were so supportive. Rae was also forwarding me your good wishes. There's no way I wasn't going to make it. I was in good shape from all the training runs I did, apart from the leg so I felt a bit disappointed about that. But hey I did it and I've got the medal to prove it! Even if I do walk like John Wayne from now on who cares! 😬
I would like to say a massive THANK YOU to everyone who has donated so far. All donations small and large, I am so grateful to you all helping me reach my target and in turn supporting Max Appeal! Also for all the well wishes yesterday. You have been amazing and so generous. I'm reading through the messages again this morning & buzzing that I've done it.
Thank you so much again! Big love x (April 2018)

A massive thank you to Virgin Marathon runner... Jack Padley

I completed the marathon in 4.12.37 and raised over £2500 for Max Appeal and Ivy Mitchell who we know.
It was a good experience and I would do it again to try and get under 4 hours which was my target this year. The atmosphere was good as was the beer on the way home.
(April 2018)

A massive thank you to the Virgin Marathon Runners

This is Joe Farmers story of the Virgin Marathon on the 22nd April 2018.
We had an absolutely fantastic day, thank you. Despite the heat, we really enjoyed the massive crowds and our families had no problems picking us out in our wonderful Max Appeal tops. We were really pleased with our times (Gareth ran 4:07 and myself and Ed ran 4:28) and even happier with our final fundraising total of £10,899.08. It has been an absolute pleasure to run on behalf of Max Appeal again and has been made even more special running it with life-long friends. We look forward to our next challenge! (April 2018)

A big thank you to Sarah Greenway

A big thank you to Sarah Greenway for her charity bike ride. This is her story:
On the 13th May I cycled 30 miles around the Hertfordshire countryside to raise funds and awareness for the Max Appeal.
Well the sun didn't shine but we didn't get wet either! The weather was fairly perfect for our bike ride and here's a photo of the 3 of us at the end of the ride with our medals and very sore legs! (may 2018)

A huge big thank you to Craig Powell

A huge thank you to Craig Powell who cycled from Crew to Weston Super Mare on 23rd March 2018 to raise funds for Max Appeal – here is his story:

Our family wasn't aware of 22q11 until Esmee came along, her story is amazing and she is Craig's inspiration behind the fundraising. Esmee is Craigs' great niece and the centre of our family. Craig just decided one day that he wanted to fundraise for this syndrome and with a little training which wasn't much, and getting the time to do it, was hard, but he just went for it. He set out at 5.45am from Crewe and had two stops, one 40 minute stop and then a 20 minute stop and arrived at Weston-Super-Mare around 8pm ish, surprisingly in really good form. This fundraising is all about the awareness . Craig is an ex-army veteran, and once he has set his mind to doing something there's no changing it. This is the story on Esmee which come from Esmees Mum .

Esmee was born in February 2009 and surprised us all by being immediately rushed to Alder Hey Children's Hospital where she was diagnosed with DiGeorge Syndrome due to her complex cardiac issues. She would continue to be an inpatient in Alder Hey' s ICU and HDU for a further 20 months where we lived with her, leaving only to be transferred to Evelina hospital in London where she underwent 3 cardiac operations, the first of which we were told she only had a 50% chance of surviving, so we are beyond grateful to soon be celebrating her 9th birthday!

Esmee was finally able to come home along with a tracheostomy, oxygen, gastrostomy and portable ventilator, and has over the years slowly been able to cope without such invasive medical support.

Esmee has the most enthusiasm for life and love for other people of anyone I have met and Max Appeal as an organisation which is invaluable for providing information and support for a condition which is still widely not known to many, including myself and my family before this special little person came into our lives.

Craig raised a whopping £1,525.00

A big thank you to Mr John Hayward

Max Appeal would like to thank Mr John Hayward and The Provisional Grand Lodge of Warwickshire for their kind donation of £500 donated to Max Appeal.

A big thank you to SCA Hygiene Products

A big thank you to SCA Hygiene Products for their cheque for £1,035. Tracey Hennighan (Max Appeal Trustee) went to SCA Hygiene to give a presentation about 22q and Max Appeal. SCA Hygiene held a coffee morning and raised a whopping £1,035.00. We would also like to thank Jodie Sandiford for organising the event.

Max Appeal says thank you to:

Kimberley Smith Boswell for holding a cake raffle at St Marks in Cumbria and raising £53.75. Thank you Kimberley

A big thank you to:

Cliff Faires and his Regency Lodge for raising £514.70 for Max Appeal. His lodge chose Max Appeal as one of 3 recipients of monies raised at their Christmas Party. Thank you Cliff

Miss N Jones at Culverhill School, Bristol for organising a coffee morning and raising £222.41. Thank you

Max Appeal says THANK YOU....

Thank you for your kind support Mrs Field for your donation of £215 in memory of your late husband.

Max Appeal would like to Thank..

Bewdley Rotary and Rotarian Mr Andrew Page for £100 each.

EPD Fundraising £240 for Halloween Cake Sale & Quiz and a further £50 from their Charities Committee.

£165 from Shelly Chapman Running Club Hamper Run on New Years Eve.

Jeans for Genes £2,500 for Teenage Camp weekend.

Hayley Delicata £241.50 from Have a Brew, match funded by her employer Pfizer £150.

Sandra MacNicol £150 Pharmacy Distribution Centre.

Govan and Neil McCathie £2,534.25 who ran London, Birmingham & Malaga Marathons.

Thank you Chris Simpson

Chris Simpson ran the Peterborough Great Eastern run in October 2017 and raised £1225. Thank you Chris for your support and hardwork.

Thank you St Fergus Primary School

Thank you to Mayah for putting Max Appeal forward.
They raised a whopping £605. We are so grateful for your support.

A big thank you to MAZDA

A huge thank you to Fiona Ross at Mazda for organising a coffee morning and a fashion show, with proceeds going to Max Appeal. The coffee morning in November raised in excess of £500. The fashion show was held at the beginning of December and was a huge success. There was cheese
and nibbles on the night, a welcoming glass of fizz and stalls selling crafts, soaps, pictures, flower and candle arrangements, popcorn and wine tasting.

The staff modelled the clothes which were all current styles from high street chains at a great discount, from SOS Fashion. The clothes were modelled expertly by MAZDA employees. Lots of bargains purchased and a great night for all.

The evening raised £700 for Max Appeal.

Thank you so much Mazda and Fiona Ross.

A big thank you to The Farmer family

Julie and Paul Wootton attended a lovely evening at Halesowen Leisure Centre, on Sunday 3rd December.

Julie said a few words about Max Appeal and then Julie and Paul presented Certificates and Plaques to all the young swimmers.

The sponsored swim which was back in October raised £1,051, which was match funded by Swim For It Club. Max Appeal was nominated by the Farmer family, as Eve and Tommy (who has 22q) attend the club and both took part in the sponsored swim. Eve swam 2.5 kilometres and Tommy 50 metres.

The other charity who were supported were Penns Meadow School in Wordsley.

We were pleased accept a cheque for £1,051.80, far more than we expected.

Thank you once again to the Farmer family.

Nathan Hewison - Nathan's White Collar Fight

Thank you to Nathan for raising £300 for Max Appeal.

A Huge Thank you from Max Appeal for the following donations

Keysoft Solutions £200.00

Peter Vardy Foundation £100.00

Hugh Fraser Foundation 1,000.00.

We are very grateful for your support.
(Oct17)

Averie's Sponsored Hair Cut

Averie would like your sponsorship to support her in having her first significant haircut. As well as raising money for Max Appeal Averie will also be donating the significant amount of hair that she is having cut to the Princess Trust that provides children suffering from Cancer with real hair wigs.
Thank you so much Averie, you have done a wonderful thing for Max Appeal and The Princess trust. She has raised over £600 so far.
Here is the link to her just giving page:
https://www.justgiving.com/fundraising/averie-bell?utm_source=facebook&utm_medium=updates&utm_content=Averie-Bell&utm_campaign=updates-facebook#updates

A Massive Big Thank You to Aaron Bullock and Powerleague

On Saturday 17th June The Max Appeal Broadcast Fives Football tournament was held at Powerleague Shoreditch in the Centre of London. On an extremely hot and sunny day 20 teams from the Broadcast Industry took battle to find out who would be the 2017 Champions!

Before the event there was an opportunity for everyone to learn about Max Appeal and
22q .11 deletion Syndrome. Chace Bullock who is 10yrs old was diagnosed with 22q .11 deletion syndrome at the age of 2, opened the tournament getting over 200 grown men to do the 'Dab' and being brave enough to say some words on the mic!

Each team played in a Champions League style group stage where they played 4 fixtures of 15 minutes. At the end of the group stage the top two teams qualified for the cup knockouts, with 3rd and 4th going into the Plate competition and 5th place going into a wooden spoon competition.
Congratulations to all teams that took part on the day. There was some great football played in very hot conditions! The Wooden Spoon Winners were Deluxe Digital B, and the Plate Winners where FC Handle.
It was the team from ITN News who were crowned the Max Appeal Broadcast Fives Champions 2017 after beating Smoke and Mirrors 2-0 in the final. Ex England and Liverpool Football Captain Mark Wright presented the trophy to ITN.

The event raised £1067 for Max Appeal and we are hoping for the event to be even bigger and better next year

Picture:
Aaron Bullock UK Corporate Sales Manager (left – Chace's daddy ) receiving the cheque from Rupert Campbell CEO of Powerleague Fives (right)

Aaron Bullock and Powerleague 'DAB'

.

Max Appeal would like to Thank Mazda

Max Appeal would like to thank Emily Wood, Rob Wood and team at Mazda for holding a "Have a Brew for 22q" and raising £500. Thank you for you support.
That cake looks amazing !

Thank You Helen for your support

A fantastic blog by Helen who ran the GNR for Max Appeal and raised over £890.

Also an article from Railnews is attached.

https://doyouevenrun.wordpress.com/2017/09/12/the-great-north-run-2017/

A Great Big Thank You To Tommy and Evie

A huge well done to Tommy and his sister Evie who did a sponsor swim to raise funds for Max Appeal. The sponsored swim Evie and Tommy (Tommy has 22q) did took place on Sunday 8th October at Halesowen swimming baths. The swimming club that arranged it is called Swim For It. Tommy swam 2 lengths and Evie swam 75. All the money hasn't been handed in yet but as soon as we know how much they raised we will let you know. Thank you and a big well done !

A Great Big Thank You To All The Great North Runners

A huge thank you from Max Appeal to all 36 runners who completed the Great North Run on September 10th 2017.
Over £18,000 raised so far.
It was a fantastic day, the weather was good, and the runners did a brilliant job. Here are a list of the runners and times:
Callum Riley - 01:31.25
Mark Nettleton - 01:35:36
Sean Doughty - 01:37:33
Andrew Cooper - 01:52:53
Ryan Cooke - 01:54:00
Scott Madden - 01:54:03
John Doyle - 01:54:21
Dan Evans - 01:54:52
Aidan McCabe - 01:56:17
Donna Morton - 02:05:27
Trevor Sutcliffe - 02:06:06
David Hill - 02:12:21
Richard Parry - 02:16:50
George Morgan - 02:17:14
Archie Wootton - 02:17:51
Joanna Barnsley - 02:21:57
Alan Wainwright - 02:22:52
Jo Rainsbury - 02:24:41
John Prendergast - 02:25:28
Joanne Griffin - 02:27:03
Philippa Reed - 02:27:04
John Deason - 02:29:46
Olwyn Wainwright - 02:30:24
Paula Titley - 02:36:34
Lauren Smith - 02:42:11
Georgia Lennard - 02:45:31
Adele Naisbitt - 02:52:45
Jeannette Sullivan - 02:54:27
Grant Smith - 02:55:27
Georgia Wootton - 03:03:51
Alexandra Lynch - 03:09:55
Michaela Lynch - 03:09:56
Helen Biggs - 03:14:52
Lynne Gillham - 03:14:52
Caira Richardson - 04:21:40

Wow - Matthew Dodd. 140km !!!!

In total Matthew managed 140 km (87 miles) with a mixture of running and walking (mainly running in the first half and mainly walking in the second half) and raised an amazing £1600.

Thank you so much for all of your support Matthew. - He also ran the London Marathon for us too!

Well done.

Matthew Dodd....

Matthew Dodd....

A huge thank you to Jenny Cooper and her Husband

A massive thank you to Jenny Copper and her husband who both completed a 50k bike ride and raised well over £1,500 for Max Appeal.

A big thank you to Catherine Flemans

Thank you to Catherine Flemans for her fundraising Zumbathon...

A big thank you to Catherine Flemans

A big thank you to Catherine Flemans who organised a fundraising Zumbathon at her local gym. 70 people turned up and all danced for two hours in severe heat to raise money for two great cause including Max Appeal. They also made the local paper aswell. Catherine was very proud as Zak (her son with 22q) did the last two dances with her. They raised about £600 for Max Appeal.

Well done and a huge thank you Catherine on behalf of Max Appeal

22q at the Zoo 21st May 2017

Thank you to Chris Ryan and Link2Connect in helping sponsor 2017 22q at the Zoo.

A big thank you to Geoff Kirk - Wolds Way Run 22nd May 2017

The MG Car Club East Yorks welcomed members from Max Appeal and we raised £300+ from the raffle. More importantly we got a mention on Radio Humberside and Look North featured the cars. A gentleman from Doncaster took details to send some pennies from a charitable coffee morning that they run. Even more important the families that turned up had a great time. Thanks to Mark Tripp and Debbie Payne for making the run up, Susan Colley and others who I can't remember, sorry. It is thought that we can make it better next year, so watch this space.

A big thank you to Marie Jenkins 100,000 steps....

This is Marie's story....
I decided to do a step challenge in February to mark Rare Disease Day. I measured my steps In January and decided to aim to do more in February - 100,000 in fact!

I have a rare hereditary disease myself which leaves me walking not very well at all and on two sticks so unlike friends and family I can't do a marathon or a 10k but I wanted to make sure I challenged myself.

I wanted to raise money for the Max Appeal as my niece has DiGeorge syndrome and my brother-in-law and sister-in-law have had so much help for Amelia from you guys.

I've been out in the rain, the snow and even storm Brenda to get my steps up and I'm pretty proud to say that with one day to go I've already smashed my target and done over 165,000 steps. My knees are definitely feeling it as are my trainers which I've had to replace as they wore out!

I'm pushing the challenge today so that I can reach my fundraising target of £250. I've already got through my target for Hereditary Spastic Paraplegia Support Group, which offers a load of help for people with the same condition as me so it only seems right to push a bit harder to get through this one too.

Well done Marie... and thank you

A big thank you to Anne Barlow for Santa Letters

Anne's Story .....I have been organising Santa letters for over ten years now and people kept saying I should charge for them, which was not in the spirit in which they are 'arranged'. So a few years ago I asked if anyone wanted to make a donation to Max appeal instead. Every year around £200 comes in and I purchase the materials myself and make the letters.

The letters include a personalised letter from Santa that the parents submit a template for, some chocolate a bag of reindeer food, a special voucher for good children to exchange for present if they leave it out xmas eve, a few puzzles / glider and of course chocolate. They all come in a box with a north pole Franking stamp and I also place fake snow in there.

From starting with doing 5 or 6 its grown into about 50 but I do get more money for Max Appeal so really rewarding and shares some awareness too. Over the years I would say I have raised over £800 and on the year my husband and stepdaughter ran for Max Appeal in the London Marathon the additional Money helped reach their target. I have letter templates from new baby to non believers and enjoy seeing the kids grow up through them and also the desirable toys each year. I would love to really do more but its time I am short of as with so many people.

Thank you Dorne and Friends

For the month of November Dorne and friends helped raise awareness by arranged the following:

Pub quiz £150 raised
Violets pre school raised £28 doing a doctors and nurses day
Lily and Ivys school, the William Alvey school, did an awareness assembly where Lee and Lily spoke and the children did a non uniform day raising £300.

Thank you for your continued support.

A big thank you to Shaun Popple for shaving his top knot !

A big thank you to Shaun Popple for raising £155 for Max Appeal. He shaved his top knot off before Christmas !! Thank you Shaun and well done.

Thank you Steve Chappell and the Post Office

Thank you Steven Chappell for your donation of £333 and thank you to the Post Office for match funding of £200. We really do appreciate your support.

Jonathan Lee Recruitment

Thank you to Jonathan Lee Recruitment for nominating Max Appeal as their charity of the quarter. They have donated Max Appeal £250.
We really do appreciated your support.

Thank you Evanbrook for your Xmas Jumper Day

Thank you to Michaela Cook and her colleagues at Evanbrook for holding a Christmas Jumper day. All donations for the day were made to Max Appeal and they made an impressive woolly amount £175.
Thank you for your support.

A big thank you to Dan Howcroft

Thank you to Dan Howcroft and his local golf club for organising a charity quiz night and raising funds for Max Appeal. Dan's nephew has 22q and he wanted to do something for the charity. Dan raised £1,000 from the quiz night, £400 from Howdens and £500 from his golf society. Thank you Dan

Have a Brew !

Thank you Deborah Noblett for arranging a get together, raffle, Tombola etc, proceeds to Max Appeal, at Roccoccos coffee lounge & bakery on Wednesday 2nd November. They raised an impressive £333.
Thank you so much for your support.

Attached are photos of Helen, me, Helen Meldrum, Matthew & Arron one of the volunteers who gave us first class service with our brews. (Deborah)

Le Tour de Bathams!

Thank you Nigel Moseley at Tulleys for raising £600 via his Le Tour de Bathams, a fundraising pub crawl on bikes round the Black Country. Hoping to see photo's of this!

Kelly's Nuclear races

Thank you Kelly for running (walking lol) a 6k obstacle course for Max Appeal and raising £485.
Well Done !

Mel's mad weekend of exercisethon!

Big thank you to Mel Chase for raising £1370 for Max Appeal. Well Done!

A huge thank you to Toby Gowan and his brother running in the Frankfurt Marathon

My brother and I ran our first marathon on the 30th October in Frankfurt. We wanted to raise money Max Appeal. Our sister, Harry, has the condition and we have seen first-hand how life changing it is. Having said that, harry is a very positive and upbeat person who throws herself into everything and long may that continue! Our father Danny Gowan ran a 25k race a couple of years back raising for Max Appeal and we both also wanted to build on his good work.
The course was pretty flat with a few dips and plenty of support over the distance. Personally it was a race of two half's for me! I hit the half marathon at around 1h 32 which was a bit too fast and I paid for it in the second lap! The last 5ks were a horror show but the support we received as we came back into the city centre made sure both legs kept moving. I eventually finished up with a time of 3h 17. My Brother, Tom took me to the cleaners and came in at an amazing 2h 57. I promise I am not bitter....
We smashed our target on the raising front coming in at just under £3k. Both raising and running this marathon have been fantastic experiences and thank you to Max Appeal for all their support along the way as well. We both look forward to working together again in the future!

Thank you Mark Billingham

Thank you Mark for raising over £200 for Max Appeal.
The Challenge is an annual event we do at Vodafone raising money for a charity of our choice
This year it was a 10k run, 1000 stair climb and an abseil off the top of Man City's stadium

A Massive Thank You to Ryan Pritchard.

Thank you Ryan for raising over £500 for Max Appeal.
I decided to run the Cardiff Half Marathon for Max Appeal, to thank you for all of the fantastic resources you provide to support families effected by 22q11.2 deletion syndrome. My son, Ben was diagnosed 3 years ago and we have found excellent advice, support, information and guidance from your website.
I was pleased to complete the race in 1 hour 52 minutes. It was only my second event like this and I beat my previous time, despite being full up with a cold!
It was a great day, perfect running weather and an amazing atmosphere amongst all the runners and supporters. I have been overwhelmed with the donations from friends, family and work colleagues and feel proud to have contributed to this charity.

Charity Night

Thank you Anita and Brothers of charity for holding a quiz night and raising a wonderful £370 for Max Appeal.


Brothers of Charity

Thank you Polwarth Nearly New Sale.

Thank you so much for your support to Max Appeal and a massive thank you for the fundraising and donation of £900.00

This money will really help to support families who are affected by 22q.

The Polwarth nearly new sale is always a busy sale with ques along the street. I love this sale for kids stuff and always get great bargains! Its always buzzing and full of people of all ages. It's run within Polwarth Church and some funding goes to the church. Other funding goes to charities. I saw on their previous poster that they had charities along the bottom and loved the thought of Max Appeal appearing on it and raising awareness of 22q as no one has ever heard of it. The money is split between the chosen charities and all the hard work is done by the girls that run it, Elaine and friends. I was amazed by the amount donated to Max Appeal and extremely grateful they replied to my emails and were happy to include Max Appeal.

A big thank you to Sue, Lucy & Nicola Gilbert for completing the Colour Run and raising just over £800

We had a great laugh on the walk, and are all so pleased to have raised so much for our chosen charity Max Appeal. We chose Max Appeal because it helps people with VCFS like my sister Lucy who walked with us. The syndrome has given her very painful joints, particularly her knees, so this walk was really an accomplishment for her. Heres us at the beginning and end! We raised just over £800.

A big thank you to Lisa Franklin & Amanda Burgoyne who raised over £800 at Annual Duck Race

Amanda and myself have been wanting to raise some money for Max Appeal for a long time and were just waiting for the right opportunity to do so. My dad was helping to organise an Annual Duck Race Day so we asked if we could have a stall which he said he yes and then told us that Max Appeal would be one of their main charities on the day and we would get to keep any money made on out stall plus 25% of the overall money taken on the day we were thrilled. Amanda is an amazing baker and said she would make all sorts of goodies to sell on the stall, fudge, brownies, hot chocolate stirrers and more, we also had cupcake decorating which went down brilliant with all the children who came. Amanda made some lovely raffle prizes too and the tickets sold well for that. We were so busy on our stall all day that we didn't manage to get any actual pictures of the duck races or get to see any of them. We would like to say a massive thank you to my dad Graham Franklin and NACCA for letting us have out stall at their event and for Max Appeal being one of the main charities. We raised just over £800 for Max Appeal.

A big thank you to Mark Elston - Iron Man Challenge - raising £1,444.00

A 70 mile triathlon. The event went really well, apart from torrential rain on the bike section!

It was quite emotional as I rode into the event site to transition from bike to run. I only started completing triathlons this year & I'd put a lot of effort into my swimming & running in particular, so I was so happy to see my wife and kids as I started the half marathon!

When I started to feel tired, I just thought of my daughter Heidi and all of the operations, hospital appointments & other challenges that she's had with Di George Syndrome. My pain was nothing & it really helped my motivation.

Thank you Ellie for fundraising for Max Appeal - completing colour obstacle rush

Ellie's fundraising on behalf of Max appeal, she successfully completed the colour obstacle rush at Uttoxeter racecourse on Saturday 18th June 2016.
So far her JustGiving page has raised just over £100 and the sponsor sheet has £119.
It was a brilliant effort by her and we are very proud of her efforts! Alex her brother(22q11 deletion) enjoyed watching her take on the challenge of the course and was at the finish line to greet her along with her mum Stephanie
Kind regards Ian Kinnear

Well Done Ellie. Brilliant fundraising. A huge Thank You from Max Appeal

Graham & Lesley Allen. Thank you for your Support

Last Saturday (19th June) Lesley held a table top sale in Aid of Max Appeal on the street outside their house. She was ably assisted by Tom Wilson along with his older brother and sister Niall and Niamh. It was part of a neighbourhood sale day where there were up to 40 stalls.

Every one was very generous and Lesley raised £125.75p on the day.

Wonderful support. Thank you all that helped.

Thank you James Parker & KiffKaf

Wonderful support from James and KiffKaf. They raised £95.30 for Max Appeal. Thanks guys.

Thank you Team Lucia

Team Lucia - Manchester 10K run
On Sunday 22nd May, "Team Lucia" ran the Manchester 10k, there was 14 of us in total, running in Max Appeal t-shirts, helping raise awareness of 22q11DS. Knowing all these people were running for our little girl was amazing and quite emotional, we can't thank them all enough!!! Race day was brilliant, the atmosphere and support from spectators along the route was amazing. Lucia was waiting at 4K with her big brother, Grandma and Grandpa to cheer us all on - she definitely gave her Daddy and me the boost we needed to get round. We started out just wanting to raise awareness for Max Appeal and 22q, with hopefully raising a few £££s along the way. We definitely didn't expect to raise as much as we did - £2,590 - and we are so grateful to everyone who has supported us. xxxxx

Big Thank you to Team Lucia from Max Appeal.Well Done.

Music for Zack

Sammi Foreman & family & friends held a fund raising night called Music for Zack on the 6th May.
There were 3 bands who performed (all giving their time for free)
Sammi would personally like to thank: Debbie, Carl, all the band's, and everyone else who went and donated.

They raised a whopping £2382.15, and £476.43 of that goes to Max Appeal.

Thank you guys for your support.

To see more info & photos please click link below to Facebook.
https://www.facebook.com/events/990313434395686/?active_tab=posts

A Massive Thank You to Tom Naughton

Tom ran the London Marathon 24th May 2016 and so far has raised a massive £1916.39.
Thank you so much for your support.

Dave Jones & Family

A wonderful massive thank you to Dave Jones, family & friends for raising £4000.
Dave ran the London Marathon in 4hr 12m.
A charity night with band was also organised and everyone had lots of fun, whilst raising money for Max Appeal.

Wow.. Thank you Claire Homhuan

Thank you Claire for running the London Marathon on the 24th April 2016. A HUGE £3370.67 raised.
Thank you Claire, for supporting Max Appeal

A Huge Thank you to the The East Yorkshire MG Car

For raising £240 for Max Appeal

For the full story please see:
www.maxappeal.org.uk/news/content.asp?ni=359

Easter Raffle

****** Max Appeal Easter Raffle ******
Leah Ryan made a marvellous Easter Egg Basket. Thank you Leah
Tickets were £1 (& 23p paypal fee) each and we raised £30.
The Winning ticket was won by Sophie Brumfitt.
Thank you to everyone who purchased a ticket.

A HUGE Well Done and Thank You to Lee and Mark Mitchell.

Lee and his brother completed their ultra challenges to raise funds for Max Appeal. Dorne Mitchell appealed to SJP after Ivy won child of bravery award and they have also contributed to the appeal.

We have now closed the page with a total of over £7000! THANK YOU SO MUCH... THAT IS FANTASTIC.XX.

Ivy had further heart surgery in November thankfully she made it home for Christmas. She is requiring ventilator again but hopefully this is short term she has amazed us all again!

Crocodile Toy Shop - Thank you for your support

Here's Max working (as he does every Friday morning) with his uncle Mark at Crocodile Toy shop,Cirencester with the Maxappeal moneyspinner. A fantastic £262.15 has been raised-

Smith & Williamson - Thank you

Smith & Williamson £200.00 as nominated by Alison Moynihan

Esher Probes Group and John Leitch - Thank you.

Esher Probus Group and John Leitch £200.00, speakers cheque and personal donation , with BP MATCH FUNDING of £200 to follow.

Kingston Choral Society and Hereford Cathedral School - Thank you

Duncan Wilkins £125.00 concert fees donated by Kingston Choral Society and Hereford Cathedral School.

The Burgoyne Family - Max Appeal Thanks you for your support.

The Burgoyne Family £160.00 from the sale of reindeer food and donation from their daughters

The Orr Mackintosh Foundation - Thank you

ShareGift The Orr Mackintosh Foundation £1,000.00 as nominated by Ketan Pankhania.

Max Appeal Thanks you Sharon Deyell

Sharon Deyell £100.00 from their annual swapshop

Zumbathon - What a great way to raise funds for Max Appeal

Thank you to Kirsty Yeung for raising over £600.

Recently I took part in a 2 hour zumbathon on 21/11/2015 in Galashiels in the Scottish Borders to raise money for Max Appeal. My daughter has 22q and my mother helped to arrange this event. The zumba instructor will send through the final donation when all counted. So far I'm aware that it is over £600. Here are just a couple of photos from the day. A great morning for a great cause.

Thank you so Much Louise Henderson for your "Have a Brew for 22Q"

Lovely note from Louise who raised a whopping £227.

Super chuffed to report that I raised £227!! Thanks to everyone who has donated and thanks to everyone who posted their brew photos! To only have 4 people come I am super chuffed I've raised a fab amount for Max Appeal so I don't feel I've let you down. And super chuffed Sarah won the Christmas cake raffle. I love you all, thanks for all the encouragement and support xx

Have a Brew at the Tripps 21st November 2015

That's a fantastic looking table of cakes.
Thank you for raising a wonderful £263 at your Have a Brew for 22q.
Cheers.

Massive Thank you to Carol Trip for holding a Have A Brew in Cyprus !!!!

Over £100 raised for Max Appeal.
The first international "Have a Brew for 22Q" event.
Full story please click link.
https://www.maxappeal.org.uk/news/content.asp?ni=292&adminaction=edit

Many thanks to Peter Heley

Many thanks to Peter Heley who secured £500 for Max Appeal through his employer London Overground Railway.

Great work Peter, thank you for supporting Max Appeal.

Thank you Harry Jones....

Thanks to Harry Jones nephew of Dave Jones, who completed his first half marathon at the Birmingham Half marathon raising £274.

Well done and thank you for supporting Max Appeal.

Thank you Jayne for holding a "Have a brew for 22q" fundraiser for Max Appeal

A massive thank you to Jayne Rabbitts for her "Have a brew for 22Q" event.

She says they all had an amazing time with lots of people.

Her daughter works for Waitrose and they kindly donated some really nice raffle prizes.

They raised a whopping £300!

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Bingo Night May 2015

Back in May Mark attended the bingo night run Kay Martin ( mum of Terri Martin and grand mother to Jacob ) in Kings Lynn.
We received a cheque for £455 that they had raised.

Thank you all so much for your support and a thank you for holding a fun bingo night for Max Appeal

John Disley Oxford Half Marathon

A massive cheers and thank you to John Disley for his support to Max Appeal by running the Oxford Half Marathon.
At present £755 raised and still coming.
Well done John !!!

John Disley Oxford Half Marathon

John Disley

Studio 3 Dance Workshop - Thank you so much for your support

Studio 3 Dance Workshop put on a show on the 19th September and all funds are being donated to Max Appeal. They raised an amazing £174.00.

In support of a little girl who has the condition 22q11 deletion called Leah Wilkins who lives in Knaresborough.

A few details
Thank you........
to all the girls for their hard work and commitment over the summer holidays.
to Marie Jones, Natalie Thomas & Alison Irek for their help and support today.
to Sara Rishton for costumes

Thank you Viv......

for the last 30 years of great teaching, great fun and great friendships that last a lifetime.
for your support and advice in the organising of this show.
Donations from tonight show will go to:-

in support of Leah Wilkins, a little girl from Knaresborough with 22q11 deletion.

Family Fun Day organised by Emma Wilkins 26th September 2015

Emma organised a fantastic family fun day with all monies raised donated to Max Appeal.

Over 400 people came and over £500 was raised.

They had a funfair, candy floss, popcorn, carts, assault course, bouncy castles, raffles and tombolo. A bar and burger vans.

Thank you so much Emma for all of your time and effort arranging this wonderful day.

Looks like it was a great success

Looks like it was a great success

Disco bouncy Castles !!!

Fun on the bouncy disco castles.

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Thank you Kayleigh Michelle Bentley...

The weekend of 12th September Kayleigh took Max Appeal to Belvoir castle and took part in Equinox24.

This is a 24 hour relay race, each lap of this hilly cross country course is 10k, she was part of a team and 5 of them covered 30 k each the other 2 covered 20k. Kayleigh ran in the pitch black of the night ( 2nd lap started at 00:35) and promoted max appeal the whole way round as so many people asked questions about it.

She thanks her lovely team mates for the donations

Where will she take her vest next? The London Marathon 2016 by the looks of it.

To donate and sponsor Kayleigh, her just giving page link is below.

uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=KayleighMcGettigan

Great North Run 2015 - Team Max Appeal

A huge thank you to all who took part in the Great North Run 2015 on behalf of Max Appeal.
Monies raised so far is £16,400. That is AMAZING.
WELL DONE.

For the full story please click the link below:
https://www.maxappeal.org.uk/news/content.asp?ni=265&adminaction=edit

188 Mile Bike ride for Max Appeal

A tremendous thank you to Phillip Hume and Team for their epic bike ride:

WE DID IT!

I am very proud to announce that a team of eight cyclists supported by five crew completed an epic bike ride on Saturday, leaving Knutsford at 6am & arriving 188 miles later in Bath at 7pm.

It was a warm day too with some pretty steep climbs akin to the mountain stages on the Tour De France so this was certainly not an easy course.

Attached are a few photos from the day.

So it's a HUGE congratulations to those who took part & a BIG thanks from those charities for whom you worked so hard for.

Lynette Dakin - Have a Brew for 22q - Fabulous Fundraising

Lynette and family held a Have a Brew for 22q and raised an impressive £250.
They had some fantastic raffle prizes.
Thank you so much from All at Max Appeal for your fundraising.

A MASSIVE Thank You to Radhika McCathie - London Marathon 2015

A MASSIVE Thank You to Radhika McCathie

Radhika says she "had a fab day, hard work but crowds amazing. I would consider doing it again but I think I would like to have some company for the run next time.

I did it in 4hours and 13 mins exactly."

Total raised £1280 to date - WOW !!!

Thank you Radhika.

Tunnel 2 Towers Walk

Well done and thank-you to everyone who took part and supported the walk.

Estimates for the monies raised is £1,000!!!

Great effort by Hannah, Cerys, Debbie, Chris and Mark and Tracey who were right behind them!


https://www.maxappeal.org.uk/fundraising/marathons/marathons/content.asp?s=67&p=77

Max Appeal Youth Weekend, Cranham Scout Camp. 23rd- 26th May 2015

Special thanks also to Mary Lonsdale in helping to keep the kitchen running smoothly and supplying plenty of food, Sarah Ryan for her help and all her wonderful cakes and all the parents who came along and helped out and generally ensured the camp was another successful Max Appeal Activity.

Please click link below for full story.
https://www.maxappeal.org.uk/news/content.asp?ni=243

A massive Thank you to our very own Martin Kennedy

Martin raised £830 for Max Appeal on this 5 ferries bike challenge around Scotland.

Martin starts....

And so the day starts. Buying the ferry tickets after riding 20 miles up the coast from where the ride finishes.

A HUGE Well Done and Thank You to Lee and Mark Mitchell.

Fundraising and raising awareness is also on target, we have almost hit the £3000 mark with donations and support from people all over the world, we have organised bake sales, a raffle and a medieval night as well as friends doing challenges themselves for Max Appeal and supporting us, our Church St Botolphs at Quarrington and Sleaford Town Football club have all been involved in supporting the appeal. The local Gym, Fitness Zone is organising a pamper day, we have a Race Night and a few other things coming up to help us hit the magic £5000 and above.

Newspapers, radio stations have all been involved in raising awareness of 22Q11DS and I speak about it at every chance I get at all the events and on my travels.

For full story and their just giving page....
https://www.maxappeal.org.uk/news/content.asp?ni=242

Teri Martin's Darts Night...

Our own Mark Tripp reporting:

They raised a fantastic amount of £611 on the night,

It was a fantastic night but very boozy, as I was driving I was probably the only sober one in the building, to put it into context they raised £90 on the night selling vodka jellies etc and the Jaager Bombs were in full force.

It was a great night and the darts was very competitive, Max Appeals very own Teri Martin hitting the winning double top to claim the ladies triple title for her team.

The raffle raised £218 which was mainly booze and then it was promptly auctioned back to the audience and hence why the total kept growing. After I had made my speech one gentlemen walked up and gave me £100 from his pocket, it was his bookies money for the following day but wanted to give it to Max Appeal instead. - Thank you Mr Anonymous.

All in all it was a fantastic night with some very caring, honest and also very generous people who came to watch and play darts but left with an interest in 22q and Max Appeal.

It was my privilege to represent Max Appeal.
Mark Tripp

Looks like Darts nights was great fun and a fabulous fund raiser for Max Appeal

Teri's team is called the Friar also a team from the 'Half Butt' Inn were also there and playing their last ever game due to the pub closing, at the end of the night they gave us £40 which was the last of the club funds.

Teddy Bear Cake Raffle

Sarah Ryan was busy baking cakes again for the Max Appeal Youth Weekend.

Thank-you for another Teddy Bear Cake which was raffled and raised £19.

Well done Sarah.

A Huge Thank you to Matt Dodd for all your hard work and fundraising.

Matt raised an amazing £4054.05 for Max Appeal. See the link below for the full story.


https://www.maxappeal.org.uk/news/content.asp?ni=230

Thank-you to the MG Car Club, East Yorkshire

Geoff and Christine Kirk are members of the MG Car Club and at this year's Wolds Way Run, East Yorkshire they raised £325 with a raffle.

Geoff and Christine were also able to give out lots of information about 22q11DS to the 94 entrants.

Thank-you to everyone who took part.

Thank you Nicola Shelock

Nicola ran the Hackney Half Marathon on the 10th May and has raised a huge £800 so far...
... You may have reported "knackered legs" but you're looking great to us...

London Marathon runners....26th April 2015

A huge well done and congratulations to all of the London Marathon runners who ran for Max Appeal...
Matthew Dodd 3.15.23
Rahdika McCathie 4.13.00
Tom Vitulli 4.20.38
Ste Wallis 4.35.55
Sam Chapman 5.35.19
Paige Taylor 5.49.23
Shelly Chapman 7.53.02

tRailBlazer Walk 13th March 2015

A huge thank you to Simon Evans and the tRailBlazer team who walked from stations of Eggesford to Umberleigh in North Devon. It's approximately 12 miles in length and will follow as closely as possible the railway line by using roads, footpaths and bridleways.
They raised OVER £3,000 for Max Appeal. MASSIVE !!!!!!

The figure keeps going up and now likely to be over £4,000.
Claire Hennessey was pleased to meet some of the tRAILblazers team at Salisbury train station in June and accept a cheque on behalf of Max Appeal. It was especially good to meet Harry and his family who are Max Appeal members.

https://www.maxappeal.org.uk/events/content.asp?ms=5&ei=117

tRAILblazers at Salisbury Train Station

A huge thank-you to everyone who took part and everyone who sponsored the walk this year.

The best fundraising result so far in the group's history!

It was great to meet Harry and have a view of the signal box controlling the local lines.

tRAILblazers 2015

Trailblazers 2015

tRAILblazers Walk 13th March 2015

Long Walk....

Asda Cheltenham Bag Pack 22nd February 2015

A great big thank you to Asda in Cheltenham for letting Max Appeal hold a bag pack instore on the 22nd February.

Cakes, coffee and more cakes......29th December 2014

A massive thank you to Lucia Sheikey, mum of Muhammed.
they raised a huge £562.47 for Max Appeal. Lots of lovely fun for the kids and cakes and hot food for everybody. What a great day it looks. It's making me very hungry. Thank you all who took part.

Lots more lovely cake....

How delicious....

Fright Night Hike 1st November 2015...A huge thank you to Liam Urtone

Liam raised £167 for Max Appeal for Hiking through the night and hopefully wasn't too scary.
Thanks again for your support.

Have a Brew at the Mitchells

Susie Mitchell and family held a "Have a Brew for 22q" and raised a massive £432.26. We thank you all, Susie, Rob, Max & Helena so much for your support. It sounds like you all had a lovely day.

Mead Open Farm 14th December 2014 - Thank you to the Ryans

Sarah, Chris and Leah Ryan did another wonderful job of arranging a get together for Max Appeal Members at Mead Open Farm on the 14th December 2014.
Thank you Sarah, Chris and Leah for another fantastic day. It was a great opportunity for families and kids to meet up and have a wonderful time (and visit santa)
A cake was made by Sarah and presented to Mark Tripp, thanking him for all the wonderful work he has done arranging the Max Appeal Train.

Thank you Sarah and family for organising Mead Open Farm 14th Dec 2014

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Staines Christmas Parade 23 November 2014

Thank you to Steve Barlow and Two Rivers Shopping Centre for choosing Max Appeal as their designated charity on the 23 November 2014.
They have raised over £1000 during their Magical Movies Christmas Parade and fairground.
Steve dressed up as Shrek ... see photo.
There is also a great news article attached.
Thank you from Max Appeal for your support.

Fundraising day at Specsavers.

Thank you to Haylie Pritchard and Specsavers in Spytty Road:
They wore silly wigs and did face painting instore
They raised a wonderful £60 for Max Appeal
Thank you for your support.

Thank you to Michelle Ford and family for the Christmas Stamps

These will help save Max Appeal money as we send out so much out in the post.