Max Appeal BearMax Appeal
www.maxappeal.org.uk


Supporting families affected by DiGeorge Syndrome, VCFS and 22q11.2 deletion

Newcastle University, Australia

ATTENTION FATHERS!!!! WE NEED YOU

University of Newcastle, Australia
Are you a father of a child with 22q11.2 Deletion syndrome? The University of Newcastle is interested in your experiences of well-being, coping styles, and access to support, as well as your level of growth since your child's diagnosis. If you want more information, or would like to complete the questionnaire, please follow this link
Go to quesstionnaire Right Arrow

SIBLINGS RESEARCH

University of Newcastle, AustraliaOver the last few years you and your family may have participated in the research projects conducted by Dr. Linda Campbell at the University of Newcastle.

We would like to thank you for your assistance and would like to take this opportunity to let you know about another project that your family may be interested in, relating to siblings' experiences:

Opportunities for growth for siblings of a child affected by a developmental disorder

The current study project is a part of Ms Shally Alam's and Ms Jane Goodwin's studies at the University of Newcastle, supervised by Dr Linda Campbell from the School of Psychology.

The study involves talking to either Shally Alam or Jane Goodwin for about one hour over the telephone or face –to-face about your journey as a sibling of a person with 22q11.2 deletion syndrome/VCFS/Di George, how you have been coping over the years, and what are the negative and positive aspects of being a sibling of the affected child. Some questions might be: How has having a sibling with a diagnosis of 22q11.2 deletion syndrome impacted you over your life time? How has the condition of your sibling influenced your feelings, emotions, goals and relationships? How you expect your future will be influenced negatively or positively from this experience?

All the information will be treated as confidential.
We will conduct the interview at your house, at the University, or wherever you feel comfortable. Children can choose whether they would like to have their parent(s) sitting in the interview with them for the interview.

If you would like further information about the study please contact:

Ms Shally Alam (Shagufta.Alam@uon.edu.au) Or

Ms Jane Goodwin (Jane.Goodwin@uon.edu.au or (02) 4349 4678), or

Dr Linda Campbell (Linda.Campbell@newcastle.edu.au).

Thank you for considering this information,

NOW FIND US ON FACEBOOK!

Facebook Group Right Arrow

Source: www.maxappeal.org.uk/research/newcastle_university_australia

© Max Appeal, 15 Meriden Avenue, Wollaston, Stourbridge, West Midlands, DY8 4QN, Tel: 0300 999 2211 Registered Charity No. 1088432