Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Jeans for Genes Day 22nd September 2017

Jeans for Genes

Image: 2_medium.pngMax Appeal was very pleased to partner with Genetic Disorders UK for this year's Jeans for Genes day on 22nd September.

Our members took part in a number of joint fund raising and awareness events around the country.

Max Appeal was one of the chosen charity's in 2017 and benefited from a Jeans for Genes Day grant. Some of our families shared their stories and helped to raise awareness of 22q11 Deletion Syndrome (DS) by being part of the publicity campaign. This included being involved in photo shoots, TV and press coverage. Some of the stories placed in the press which helped to support the day and raise awareness of 22q11 DS.

Monies raised through this year's Jeans for Genes Day supported the Max Appeal Youth Camp in July 2017 at Waddecar Scout Centre.

Bassingbourn mum speaks out about teenage daughter's genetic condition to raise awareness

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