Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Patient Support Event 22q Family Day

30th September 2017 Glasgow Royal Hospital for Children

Image: 20914607_10155351916205791_8678657229772331318_n_medium.jpgA big well done to the Office for Rare Conditions, Glasgow, for organising this event, & thanks for inviting Max Appeal to take part.

There were an astonishing 54 adults attending the day, plus children, great to see so many there.

There were some very interesting talks in the morning by Dr Margot Whiteford, consultant clinical geneticist, Dr Patrick Noonan, consultant paediatric cardiologist and Vicky Price, clinical nurse specialist in immunology.

Lunch was a great opportunity for families to get together, compare notes & make friendships, great to realise that you are not alone.

The afternoon was run as a sort of workshop, managed by Grace Macleod, clinical nurse specialist in genetics and our very own Julie Wootton. They had so much sensible advice to impart in the management & education of 22q. The time flew for this session.

Glasgow rare conditions are hoping to organise further events like this, & Max Appeal will be involved again....looking forward to it.

Slide show presentations from the day are detailed below.

Dr Margo Whiteford
Dr Patrick Noonan
Vicki Price