News 2012

Tuesday 15th May 2012
Max Appeal informs ECHDO on 22q learning issues
European Congenital Heart Disease Organisation.
Tuesday 15th May 2012
International Meeting in Florida
The 8th Biennial International 22q11.2
Tuesday 15th May 2012
Sci Fi for Max Appeal
Hello there fellow members of Max Appeal!! Craig Adams here.
Tuesday 15th May 2012
Think HEART goes to the House of Commons
Max Appeal represented people with 22q at the programme for Screening and Early Detection forum on Monday 14th May at the The Diana Rooms in...
Tuesday 15th May 2012
From DLA to PIP
DLA is currently being reformed and will be replaced with Personal Independence Payments.
Friday 11th May 2012
Childrens Heart Week 14th - 20th May
The Children's Heart Federation has organised a number of events on behalf of members to promote 'Children's Heart Week'.
Friday 11th May 2012
PGL Activity weekends
HeartLine Association have places available on their activity weekends..
Tuesday 1st May 2012
Super Hero Fun Run
Max Appeal has some places available for the Superhero Fun Run, on the 13th May 2012 in Regent's Park, London.
Monday 30th April 2012
Virgin London Marathon Review
Last Sunday I did what I set out to do some 20 weeks ago.
Thursday 26th April 2012
22q at the Zoo
Lots of stories and photos about the day are coming through to Max Appeal.
Saturday 21st April 2012
Virgin London Marathon 2012
Loads of good luck is being sent to our three runners in this year's London Marathon.
Wednesday 11th April 2012
22q at the Zoo
Around 350 people will be attending five venues; Bristol, Chester, Flamingo Land, Edinbrugh and Whipsnade, raising awareness of 22q deletion...
Saturday 31st March 2012
Children with 22q deletion given grant from Jeans for Genes Day 2012
Max Appeal is popping the champagne after receiving a grant of £12,000 from Genetic Disorders UK, the national charity that organises Jeans...
Wednesday 28th March 2012
Cardiff University Behaviour Study
VOLUNTEERS (Aged 6 -17 years) NEEDED FOR CHILDREN’S STUDY Children with VCFS can experience learning difficulties.
Monday 19th March 2012
Pair skydive for Max Appeal
We were pleased to hear from Russ and Gary when they got in touch and said that they would like to raise funds for Max Appeal by taking part...
Wednesday 8th February 2012
Growth Charts
Download the full set on pdf.
Wednesday 8th February 2012
USA Newborn Screening Project
Breaking new ground!! The meeting on 26th of January in Washingtom DC, with the US Secretary of Health’s Committee on Heritable Disorders...

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