Medical & Educational Organisations
Children's Hospital of Philadelphia (CHOP)
The Children's Hospital of Philadelphia is ranked among the leading paediatric hospitals and research facilities in the world. They have the only full multidisciplinary clinic in the US and have lots of really useful and easy to understand information. Max Appeal is fortunate to have very good links via Donna McDonald McGinn at CHOP.
http://www.chop.edu/service/22q-and-you-center
Institute of Child Health - Great Ormond Street
This information sheet explains about 22q11 deletion and what it could mean for your child. It also gives suggestions for how you can ensure the best treatment and support for your child through Great Ormond Street Hospital
www.ich.ucl.ac.uk
Central Cardiac Audit Database
View survival results for each paediatric and congenital heart surgical unit in England and Wales. This is an excellent site to visit if your child is due for cardiac surgery/catheter procedure.
www.ccad/congenital
VCFSEF
The Velo-Cardio-Facial Syndrome Educational Foundation, Inc. An international not-for-profit, self-help organisation dedicated to providing support and information to individuals who are affected by Velo-Cardio-Facial syndrome, their families, physicians and other practitioners.
www.vcfsef.org
