Medical & Educational Organisations
British Society for ImmunologistsThe BSI is one of the oldest, largest, and most active, Immunology societies in the world and is the largest in Europe. Our members are based all over the world, with the majority working in Britain.
The BSI's main objective is to promote and support excellence in research, scholarship and clinical practice in immunology for the benefit of human and animal health and welfare. The BSI seeks to help British Immunology accomplish the highest possible goals.
Visit the BSI
Central Cardiac Audit DatabaseView survival results for each paediatric and congenital heart surgical unit in England and Wales. This is an excellent site to visit if your child is due for cardiac surgery/catheter procedure.
Congenital Cardiac Nurses AssociationPreviously known as the Paediatric Cardiac Nurses Association.
Children's Hospital of Philadelphia (CHOP)The Children's Hospital of Philadelphia is ranked among the leading paediatric hospitals and research facilities in the world. They have the only full multidisciplinary clinic in the US and have lots of really useful and easy to understand information. Max Appeal is fortunate to have very good links via Donna McDonald McGinn at CHOP.
Institute of Child Health - Great Ormond StreetThis information sheet explains about 22q11 deletion and what it could mean for your child. It also gives suggestions for how you can ensure the best treatment and support for your child through Great Ormond Street Hospital
SSBPSociety for the Study of Behavioural Phenotypes
Totonto Sick Kids HospitalUseful multi-discilinary advice!
VCFSEFThe Velo-Cardio-Facial Syndrome Educational Foundation, Inc. An international not-for-profit, self-help organisation dedicated to providing support and information to individuals who are affected by Velo-Cardio-Facial syndrome, their families, physicians and other practitioners.