22q Groups Around The World
ArgentinaFamilias 22Q11.2 D.S./VCFS - Spanish language VCFS site for Argentina!
Australia (New South Wales)VCFS & 22q11 Foundation of NSW (Australia) Registered Charity CFN13849, ABN 22 379 450 116 Supporting those affected by deletion 22q11 Useful information in pdf format for families and local support.
Australia (Queensland)The Velo Cardio Facial Syndrome Foundation Queensland was established to help and support groups of VCFS sufferers and their families, with the view to social contact, sharing information and educating people about VCFS. (This is an Aussie language site, mate!)
BelgiumVECARFA Belgie, (Dutch language).
BelgiumBelgique - Relais 22 (site francophone) - Belgian French language site (en cours de construction).
CanadaChromosome 22 Central - English language. C22C are multinational, with representation as far off as Chile! You may see some suspiciously similar wristbands on their site, but of course you can get top-quality ones from us back here in Blighty!!!
FranceGeneration 22 - French support group, hosts with VCFSEF of the Strasbourg 2006 meeting. French language site.
GermanyDeutschland - KiDS-22q11 - German 22q11 support group (German language) covering Germany, Austria and Switzerland
IrelandThe 22q11 Ireland Support Group. Congratulations to Anne Lawlor for setting up her Irish charity!
ItalyAIdel22 - Italian 22q group - Italia - Associazione Italiana Delezione Cromosoma 22.
NetherlandsNederlands - VCFS.nl Het Oudernetwerk VCFS - Dutch language support group.
NorwayNorwegian DiGeorge supoprt site.Norge - Foreningen DiGeorge Syndrom.
SpainVisit the web site (went live in June 201) for information and support for people in Spain or if you wish to visit Spain and would like to know about local support and information.
SwedenSverige - Foreningen catch 22 22q11 deletionssyndrom - The Swedish 22q11 support group!
SwitzerlandA Swiss 22q11 site, French language and all that cool mountain air.
USAThe International 22q11.2 Deletion Syndrome Foundation.
Dalglish Clinic in TorontoThe Dalglish Family Hearts & Minds Clinic for Adults with 22q11.2 Deletion Syndrome is the first of its kind in the world. Under the leadership of Dr. Anne Bassett and Dr. Alan Fung, it is a one-stop-shop for adult patients with 22q11.2DS and their families. The clinic provides them with multidisciplinary and collaborative care from specialists in psychiatry, endocrinology, neurology, cardiology, social work, nutrition, and genetics. The website of the clinic (http://22q.ca) offers a wealth of information for patients, families, medical professionals, and educators.