Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Here is where we try to post up all the things going on for families, fundraisers and about research projects that people might want to get involved with!

Ben and Dan Smith Paddleboard 300km in 5 days fundraising event

Image: picture12186838_medium.jpgBen and Vicki Smith will be attempting a 300km paddleboard in 5 days on the 24th August with Ben's brother and his wife. They will be raising funds for Max Appeal. The training is going well - especially due to the brilliant weather we have had. Here is a an upto date blog so far. Please click on the link and read the story.

http://suphubuk.com/paddling-300km-in-5-days-whos-that-insane/