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First time on this site - Read this

The reason you are here is probably because you have a child diagnosed with 22q11 deleteion/VCFS/DiGeorge syndrome.

Never heard of it before? Neither had we (once).

Please click on the attachment below to view our "Introduction" leaflet that gives a brief overview of the more frequently encountered issues.

Some of the issues can be quite obvious in some children, in others it can be quite subtle.

For some, only time will tell to what extent the problems show themselves.Youu can view individual leaflets on some of the more commonly encountered issued inder "Information", or you can "Contact Us" and we will post information to you.

Under "Max and Friends" there are stories and case histories from parents and relatives. It is understandable that the people more likely to contribute their story are those who have been through more troubled times.

For the majority of families life brings its hurdles but for the most part things chug along fairly well. We would love to hear from more of these families so that a more balanced perspective on life with 22qdel can be demonstrated.

Do speak to your medical team and get some help understanding what is, after all, a very large thing to take in.

Please use our helpline. We are here to help you and we understand what you are going through.

"Introdcution for Parents" leaflet: Click here for the attached file | Download Adobe Acrobat